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    After The Storm

    After The Storm

    Somewhere, in my memory box is a poem called After The Storm that I wrote. I haven’t found that box and hope it survived our flood.  It also makes me think of the poem, After a While by Veronica A. Shoffstall and the blog I wrote featuring it titled: Hopeful.  

    What does this have to do with After the Storm?  Well, I will find the poem but the storm for me has been my health but more recently we experienced a catastrophic rainstorm.  We had almost seven inches of rain in less than three hours.  As a result of this storm, we flooded, in our yard and then in the house.  We also got rain from the roof that leaked as a result of the catastrophic windstorm in March.  (that’s another rant)

    Photo from the Windsor Star – link on photo

    What the Ditch/Drain is like normally

    We have this check valve or back up valve that is installed so we don’t get water.  Well, the valve failed.  At first, the water was just in the yard, on the street but then it came rushing up the drain in the floor.  When we moved into this house, it was covered with tinfoil.  The only water we’d had in 22 years was when the hose broke on our washer when we were out at a birthday party.  We have a wet/dry vacuum but it would fill in seconds but our son brought home a sump pump, then our son went to my grams to get her spare sump pump.  We had two pumps going in the basement and we were able to keep it to about 3-4 inches when our neighbours had a foot to a foot and a half of water.  On top of all this, we were getting leaks in the bathroom and kitchen.  The kitchen isn’t so bad but the bathroom is another story.  Our insurance company, Allstate, has been great.  Our basement is covered to our maximum allowed and because we did so much of the hauling of the wet and severely smelly carpet, boxes and clothes out to a bin we ordered, we will not have to pay the deductible.  The roof that was supposed to be replaced after March is now going back to the insurance company to reassess the damage because it now includes water damage that shouldn’t have been there.  We are waiting on that.  After the storm, we already have the cheque from Allstate and can start to put this part of our life back together.

    L-R, Backyard Lake, Flooded Road, Flooded basement, first pile of wet, soggy basement items, The Sasso Bin with load #2, the Red Sky at Night After the Storm

     

    I’m also working on my health.  My health storm isn’t over but I’m choosing to find the balance.  I’ve become a doTerra Wellness Advocate to save money on essential oils for my personal use but it’s become so much more to me.  I can look in every room of the house that and see doterra products, be it oils to shampoo, to soap to a diffuser or two.  Slowly, I’m adding more and more natural, healthy for me items into my life.  I’m excited about doterra and the direction it’s heading for me.  I have my now too small box of oils, a larger one is on my Amazon wishlist!  I have doterra products all over the house now, hand cream that is not greasy, soap and shampoo in the shower.  I plan on making my own bath bombs because the store bought ones are just too strong for me.  I have lemon and wild orange on my window sill for adding to water.

    I’m still getting nerve block shots in my head, neck, back and SI joints weekly.  The hope is to be able to go every two weeks soon.  I have scheduled the appointment to see my Endocrinologist so that we can all work to trying the LDN. I have every doctor on my team visits in the next two weeks, after trying to only schedule two per week.  It is actually exhausting getting ready, getting there on time only to wait for long periods of time.  I have been really out of sorts and finally figured out that I was doubling my iron pills and not taking my antidepressant.  Yeah, that was a really stupid thing.  Lesson learned, look at the actual label before filling up your Pill Drill for the week.  Our new mattress set will be delivered on Friday, so we are hoping for a great night’s sleep.

    Sleep, I need sleep, it’s just been so exhausting.

    mini2z … journey with me

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    Chronicles of Professional Patient

    Chronicles of Professional Patient

    In one of my brain fog moments, I thought that this would be a good feature to share with you what the path my journey has been taking.   I see at least one doctor a week and sometimes several in a week.  I try my best to only schedule one appointment per day as more than one really knocks me out with exhaustion and pain.  I’ve tried to write so many blog posts lately but they never seem to get finished.  I get really good ideas and get on a writing roll and then I can’t seem to finish them.  I have seventeen, yes, 17 drafts in my folder.  I was pretty shocked by that!

    Therapeutic Nerve Block

    Chronic Pain

    I’m in week 16 of a 12-week trial of pain care trial.  I’m going to guess that I get to stay with the program.  The doctor I see is actually pretty awesome.  He’s so awesome that I want whoever is my driver to come in with me to meet him and sometimes his pretty awesome wife is working along with him.  My mom, my kidlet, my hubby and even a sister=in-law have met him and all of them talk about how personable, informative, attentive and caring he is.  What started out as a few shots in my lower back has morphed into back, neck and migraine treatments.  I’m getting Therapeutic Nerve Blocks and Trigger Point Injections in many nerves and muscles in my back, neck, hips and head.

     

    Therapeutic Nerve Blocks involve local anesthetic and anti-inflammatory medication injected near a specific nerve or group of nerves to relieve pain.

    A New Symptom

    I’m having some sort of seizure and syncope episodes.  Syncope is the medical word for fainting.  Seizures explain what’s happening at times when I faint but at other times I just seem to be shaking.  During these episodes and after, I have lost some hearing, some memory loss and injured myself.  I’ve had all kinds of tests to my heart with a heart specialist and I’m waiting on more tests to be scheduled.  Since we don’t know what it is, I’m being safe and not going downstairs if no one is home and I won’t shower if there isn’t someone home either.

     

    Low Dose Naltrexone or LDN

    My Pain Care doctor brought up Low Dose Naltrexone (LDN) with me this past week and asked me to research it in relation to me.  On WebMD, there is a definition of Naltrexone is the drug that is commonly prescribed in the 50mg doses for narcotic drug addiction.  There are not any definitions for the Low Dose Naltrexone.

    One of the big things is you need to be off of any narcotics for two weeks before starting with LDN.  This is a big concern because my migraine medication has a narcotic in it.  So the pain in my body that’s not being alleviated by the Therapeutic Nerve Block would be helped by LDN. The thyroid medication I take for my Hashimoto’scould need to be monitored and reduced as well.  I have done a lot of reading, in thanks to Donna at xxx for all the articles she’s shared.  What I’ve learned is:

    Pros:  helps my pain, reduces my thyroid medications, improved sleep

    Cons:  No medication for migraines, detoxify from current pain medications

    Will I try it?  Yes. Why? Well, that’s easy, I want to be me again!  I miss me and who I was!

     

    I miss me and who I was! Click To Tweet

     

    My Wellness Journey

    I became a doterra wellness consultant.  The simple reason was the discounts on the oils that I was going to get for my own personal use. If I can help anyone else while I’m on my journey, then that’s a bonus.  I’m learning so much about the oils and their uses and really could kick myself that I didn’t try this before.  I’m learning as I go and I have a great team that I can ask questions to as well.

    I’m going to do a monthly blog Chronicle of a Professional Patient at the beginning of the month.   I’m back to setting goals for myself and pulling myself up to continue to heal.   I hope you’ll continue on this Journey With Me!

    mini2z

     

     

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    Feeling Lost

     

    I’m okay, I’ve been feeling completely lost …

    I’ve been feeling completely lost. I’ve been playing it’s not anything, just my sugar, just my blood pressure but something is wrong. Today I go and get a heart monitor that I have to wear for the next two weeks.  I go after a week to have it read and schedule more tests.  My daughter seems to think that I have an arrhythmia of some sort and I will need a pacemaker, that’s the nurse in her speaking I’m guessing.  She’s the type of matter of fact speaking her mind person.  You see, she’s been with me for a few of my most recent fainting, shaking episodes. Two of those episodes were in a few short hour time span.  I get dizzy, sound is very distorted or I can’t hear at all, my vision goes blurry, I get a tingling in my arms and hands, I can’t stand, I’m tired and after I’m tired and my head hurts.  This scares the crap out of me  My blood sugar levels have been within normal ranges and my blood pressure levels have been within normal ranges so testing my heart it is.

     

    I’ve retreated so far into me that I feel lost

     

    If you just stumbled onto my ramblings, then welcome.  I’m a Chronic Illness warrior fighting Lupus, Fibromyalgia, Chronic Migraines, Chronic Pain, Diabetes and Hashimoto’s Thyroiditis and to top it off, I am battling with depression and anxiety. I haven’t written a blog in a few weeks because of that depression and the feeling lost.  Writing has always been my escape but I couldn’t seem to bring myself to write.  Seems like I get two steps ahead and then four steps back with no end in sight.  The goals have been to get me stable and see how things go.  Well, it’s been over two years since I’ve been off of work and I miss working.  I know I can’t work the way I am with any of my issues, hell I can’t even read and remember what it was I was reading.  My anxiety is lower but I haven’t driven much in the past two years and currently, I’m terrified that something will happen to me if I drive.  I’m alone a lot of the time and I like people, I like talking to people and I miss that interaction.  I’ve retreated so far into me that I feel lost even after two years of treatment.

    I hate needles ... I needed to try Click To Tweet

    I’m working on a blog about the Therapeutic Nerve Therapy that I’ve been getting at the Pain Care Clinic but I’ll share a brief description.  I started out ten weeks ago but I’m on week eight of getting shots.  The shots started out in my spine and in the lower back and they’re directly in the nerves.  Oh, I hate needles but if it was going to give me relief (it has some) then I needed to try.  The doctor running the trial is amazing.  I like him and he’s informative about all the side effects, adjusts the sites as needed and increased the sites as well.  He’s also given me some extra cortisone shots into my SI joint.  More on this form of torture and relief to come soon!

    I’m okay and not in a bad place in my head even with all that I’m dealing with.  I’m still mourning the loss of who I was while finding the new me.

    I hope you’ll come back and check out future blogs. I’ve received and will be receiving some products to try and even the pupalups will be getting some products to try as well, so I hope you’ll check those out too.

     

    Journey with me … mini2z

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