Follow:
Browsing Category:

autoimmune illness

    Update on my But I Am Sick page …

    I currently have three autoimmune diseases and they are also invisible illnesses.

    I currently have three autoimmune diseases ... Click To Tweet

    Hashimoto’s Thyroiditis

    In 1994 when I was pregnant with my son I received my first autoimmune diagnosis for Hashimoto’s Thyroiditis.  I saw an endocrinologist when I was pregnant and then he dismissed me after.  I’ve only been under my family doctor’s care for most of the time.

    Type 1.5 Diabetes or Latent Autoimmune Diabetes in Adults or LADA

    In April of 2012, I received a diagnosis of Latent Autoimmune Diabetes in Adults or LADA as a short form.  I was first diagnosed as a type 2 but when I saw my new endo I was then told I was a LADA or a type 1.5 or a progressing type one. I had never heard of it but it’s the adult version of diabetes it just takes everyone a different amount of time for the body to kill the pancreas. I am currently on three different pills to control diabetes and have been begging for insulin for about a year now.

    Lupus

    In November of 2014, I was finally diagnosed with Lupus SLE.  It had been three years of feeling like I have the flu. No one test or person is the same with Lupus and mine seems to not like my liver. I get only a faint butterfly rash on my face and it comes and goes.  I’ve had times where I’ve slept for two days straight and taking a shower means I have to nap afterwards sometimes. I’ve been delayed being put on Plaquenil because of the liver issue that isn’t an issue.

    Fibromyalgia

    This is my Rheumatologist’s catch-all for my other symptoms.

    Chronic Pain

    I have chronic pain in my whole body.  I have it really bad in my joints from lupus and fibromyalgia.  I’m currently undergoing some nerve therapy shots to my back, hips and SI joints.

    Chronic Migraines

    My migraines have plagued me since I was in my early 20’s.  I got my first one about a month after a bump to the back of my head.  To this day my migraines still occur in that spot.  I’ve written a blog about the story of my migraines.  My current treatment is receiving Botox.  You can view that here.

    But I am sick, a diary of my invisible illnesses …

     

    Journey with me … mini2z

    mini2z blog logo

    Share Button
    Share

    Blogger’s Writer’s Block – My Stuggle Is Real

     

    Blogger’s Writing Block – My Struggle Is Real

    I’ve only written blogs lately about products I’ve sampled.  I love writing. I love reading. I haven’t been able to enjoy either for quite a while.  I can’t remember what I’ve read, what I’m doing in the room, not even remembering why I’ve gone to a website.  Writing seems to flow when I’m focused or have a commitment to fulfill.  The struggle is real is a phrase that’s become so frequent from my daughter and her friend’s generation.  It’s a fitting phrase for those with chronic illness because the struggles we have are real.

    I have been asked to write a blog post on puppy updates and advise to give other op parents.  I completely misunderstood but it’s a topic near and dear to my heart.  Check out Ranger’s new Squirrel watching pose.  We got rid of the bush so he has a better view for watching.

     

    How have I been? 

    I saw my rheumatologist last Thursday and I got the cortisone shots in my hips.  My follow-up kidney functions came back good but I have to get some more laboratory tests this week just to double-check.  Since the shots have kicked in I’ve had a bit of energy everyday so I can get something done.  I saw my family doctor last week as well and everything thing I brought up, he said I needed to talk to my other doctors.  It was a pretty frustrating visit for me as I’m still waiting for a referral to the pain specialist.  I can’t get a change in my pain medications until I see that doctor and I’m still waiting for an appointment.  Waiting for a specialist is absolutely crazy.

    What have I been doing?

    I bought this French Wine box from the LCBO to see how their new home delivery was.  It was $12 and delivered by Canada Post.  I ordered on a Sunday night and had it by Tuesday mid-morning.  The Canada Post guys said that everyone has been saying how fast the shipping was.  Everything was well packed and labelled that it was breakable.  Because I was paying the delivery fee of $12, I grabbed a couple bottles of my favorite wines as well.

    LCBO

    The Discovery Box includes: Les Dauphins Côtes Du Rhône Reserve Red 2014, Georges Duboeuf Beaujolais 2008, F Lurton Fumées Blanches Sauvignon Blanc Vdf 2010, a set of 2 Ceramic Ramekins, a Cheese Knife Block Set, a set of Ceramic Chalkboard Cheese Markers and the LCBO France-to-Go booklet.  The box also included an invitation to sample the newly released vintage on November 18th.

    I’ve been getting some online Christmas present shopping done.  It’s pretty easy now that the kidlets are older.  My daughter asked for her Organic Chemistry book for Christmas, Umm okay then… That’s a first.  My son asked for clothes or a laptop he can actually type on it.

    My hubby caught me watching some Christmas movies yesterday.  He commented how its only November but wondered if they had made me cry.  Yep, crying at Hallmark movies, the commercials even make me cry!  I did find that it made me feel more like Christmas is coming that it feels.  It is currently another sunny day and pretty mild for November and I’m enjoying the sun streaming in.  I’ve also found a tv series called The Librarians on Crave TV.  It has Noah Wyle, Rebbeca Ramon and John Laroquette and well it’s the adventures of the Librarians and their saving History and artifacts.  It’s quirky and silly but it’s a fun watch.  I love history and the premise of time travel and even better, in January season three will be airing.

    OUT of Spoons

    Fibromyalgia, what is it?

    My fellow blogger friend, Ness from The Girl With Five Lads wrote a great blog post about what Fibromyalgia is. https://www.facebook.com/thegirlwiththefiveladsengland/posts/1816104628627260 

    For me Fibromyalgia was a “oh that’s Fibromyalgia in an off-hand sort of way from my previous Rheumatologist explained the non lupus pain.  The pressure points were like knife stabbing pains as the doctor pushed on them.  My joints hurt all the time but those pressure points were insane pain.  I’m taking Gababpentin in some pretty high doses but my doctor explained that because I can handle it that it can be increased.

    I hope you enjoyed my update and my wandering out of hibernation of ignoring my blogging with mush brain.

    Journey with me … mini2z


    Share Button
    Share

    Rough Times, Blog Changes, Sleep, Flares, Good Things

     

    I hope you can tell but I’ve made some changes to the blog. I recently purchased a Chloe and Marc Theme on Etsy from a nice lady Mai, who installed it as part of purchase.  It worked out that she added the plugins that I requested.  I’m still updating a few things.  Today, after a few days of craziness getting my blog theme looking nice and a lot of headaches with remembering passwords.  The theme I bought was Chloe and Marc and it was on sale.  I love sales and they’re pretty awesome and I love the look and I hope you do too.   If you do see something that doesn’t look right, please let me know.  The whole reason I looked into buying the theme was because when I changed over from WordPress to self hosted my blog looked a mess.  I wasn’t happy where things were and I like neat on some things.  My life is chaos so this is a little part I can control with a lot of saving and closing my computer.

    I may have lupus but lupus doesn't have me

    I’ve had a rough couple weeks with chronic pain.  It’s a searing pain that is in my hips, back and legs.  The itchiness has come back and the nausea is unbearable.  My food consumption is very minute on what I can stand to eat.  Milkshakes, smoothies, citrus and toast are about all that I’m able to tolerate.  I’m an avid tea drinker and I have gone two days without any tea.

    Lupus has had me basically in bed, sleeping, not sleeping Click To Tweet

    Lupus has had me basically in bed, sleeping, not sleeping.  I try to remember me as I used to be when I was able to do anything I wanted to without wondering will I need to rest?  Can I walk through the store to get groceries?  This life of chronic illness has taken so much away from me and I wonder when I will get a break?

    I’ve seen most of my doctors in the last week and a half and it’s basically stay the course for me.  No medication changes or any tests from them in the next two weeks yeah!  I do have one more doctor appointment and its with my gastroenterologist .  I’m still waiting to see the Neurologist who is the doctor for the chronic pain and the migraines. I do have to get a follow up urine test for protein in my urine.  The fact that I had one test with proteins in my urine is concerning enough and las week was crazy, more on that in a minute.  Moods have been the same level of blah. It’s true that pain causes you to be depressed and the depression makes you think of the pain more as well.

    The world awaits turtle in Curaçao

    My daughter (who will always be my baby kidlet) last week started college in the Registered Practical Nursing program. Wednesday a call was received and she received a spot in the Bachelor of Science Nursing Program.  I text her, she says she’s in class, I try to explain you need to leave class and call the director back now!  So she went to school in the RPN and came home in the BScN program.  She sold most of her books the next day, she was also able to purchase most of the new ones she needed as well.  I did buy a “code” for over $150, yes a code, the book cost her more money but the code was an insane amount.  Her first day was the Friday and she came home happy.  I knew that she was happy in the RPN but it wasn’t her dream course. Now having a nurse to take care of momma and daddy in the future is a good thing.

    BScN
    Things have been crazy for me with doctors, lupus flare, computer issues and I hope you’re all well.  I’m hoping for some more normal days ahead, at least what’s become my new normal.

    Journey with me … mini2z

    mini2z blog logo

     

    Share Button
    Share
%d bloggers like this: