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    Update on my But I Am Sick page …

    I currently have three autoimmune diseases and they are also invisible illnesses.

    I currently have three autoimmune diseases ... Click To Tweet

    Hashimoto’s Thyroiditis

    In 1994 when I was pregnant with my son I received my first autoimmune diagnosis for Hashimoto’s Thyroiditis.  I saw an endocrinologist when I was pregnant and then he dismissed me after.  I’ve only been under my family doctor’s care for most of the time.

    Type 1.5 Diabetes or Latent Autoimmune Diabetes in Adults or LADA

    In April of 2012, I received a diagnosis of Latent Autoimmune Diabetes in Adults or LADA as a short form.  I was first diagnosed as a type 2 but when I saw my new endo I was then told I was a LADA or a type 1.5 or a progressing type one. I had never heard of it but it’s the adult version of diabetes it just takes everyone a different amount of time for the body to kill the pancreas. I am currently on three different pills to control diabetes and have been begging for insulin for about a year now.

    Lupus

    In November of 2014, I was finally diagnosed with Lupus SLE.  It had been three years of feeling like I have the flu. No one test or person is the same with Lupus and mine seems to not like my liver. I get only a faint butterfly rash on my face and it comes and goes.  I’ve had times where I’ve slept for two days straight and taking a shower means I have to nap afterwards sometimes. I’ve been delayed being put on Plaquenil because of the liver issue that isn’t an issue.

    Fibromyalgia

    This is my Rheumatologist’s catch-all for my other symptoms.

    Chronic Pain

    I have chronic pain in my whole body.  I have it really bad in my joints from lupus and fibromyalgia.  I’m currently undergoing some nerve therapy shots to my back, hips and SI joints.

    Chronic Migraines

    My migraines have plagued me since I was in my early 20’s.  I got my first one about a month after a bump to the back of my head.  To this day my migraines still occur in that spot.  I’ve written a blog about the story of my migraines.  My current treatment is receiving Botox.  You can view that here.

    But I am sick, a diary of my invisible illnesses …

     

    Journey with me … mini2z

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    Where Oh Where I Have I Been?


    Where Oh Where I Have I Been?

    I haven’t written a proper blog since December.  I can only think that I haven’t felt like writing because of my depression.  I have always loved Christmas and the holiday season but since I’ve been battling with all these illnesses is the reason that I haven’t found my new normal.  I’m trying to find the balance but I don’t feel like I’m there yet. Christmas was an amazing time with my family.  We spent Christmas Eve at my mother-in-law’s and Christmas my mom, gram and mother-in-law came to our house.  I spent the next few days recovering because I should have napped both days but I pushed my body too much.

    I finally saw a neurologist just before Christmas.  He spent almost an hour doing the check up and prescribed a medication that I had to try before my insurance would pay for the botox.  The botox will be in three spots on my head.  I’ve also been referred for two MRI’s of my head, back and hips.  The hope is that they can do both of the MRI’s together so I don’t have to go into the machine twice.  I am claustrophobic so two tests won’t be fun for me. March 6th will mark the first and hopefully my only MRI but I know I can handle two being mildly sedated for them at the very least.

     

     

    I posted this on my New Year’s Post but I don’t make “resolutions” as I will always break them.  I will list some things I’m going to work on doing better, (working on) though:

    • budgeting – meal planning, cut back on spending (subscription boxes)
    • blog on a sort of set schedule for me – sponsored blogs yeah they get done but personal ones go on the back burner
    • walking and yoga – again it’s not something that I can schedule but I’d like to have someone walk with me with the pupalups and get to yoga once a week
    • keep getting better rest and sleep – it has improved but the painsomnia can’t be helped
    • not feel guilty for what I can’t do – that’s a hard one but working on it every day
    • try to get my nails in order, take medications on time (more on that in a couple months)
    • get to the dentist to get the work the work that needs to be done.

     

    Today is Family Day in my province of Ontario, Canada.  It’s a relatively new holiday created so there was a day off between Christmas and Easter.  It’s February 20th and it’s already 48 degrees out.  My dogs aren’t complaining about wanting back in after two seconds outside.  We had record high temperatures on Saturday.

    On Saturday, I finally received the call from the pain clinic.  I have my two appointments. The first is approximately 1.5 hours with twelve pages of documents to fill out.  The second appointment is about two hours.  She asked if the dates would work and I said, no matter what I’d work it out because I’ve been waiting for these for almost a year.

    I hope you’ll grab a cuppa tea and continue on this journey with me.

    mini2z

    mini2z journey with me

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    Inspired by family, memories, Thanksgiving

    <a href=”http://www.bloglovin.com/blog/14942087/?claim=dwhc9xemu94″>Follow my blog with Bloglovin</a>

    Yesterday, the question came up have I been inspired lately?  Well I hadn’t because I’ve just been in a mood.  Pain has a way of doing that do you.  I was happy that the past week was a “no doctor’s appointments” at all week, none, nada, not a one. This week I have two or three; I don’t have my planner beside me so I can’t remember.

    My daughter came home from school, tired and exhausted but happy.  Made me think, all the time I’ve been sick and I’m in my room a lot; my bed has become the go to gathering spot.  I’ve had three kidlets and sometimes a dog or two talking to me about their day, their plans and cheering me up. Inspiration had me thinking, my daughter and her friends who I think of as daughters who gather in my bed instead of my living room and the big comfy couch.  So this weekend was special because the extra daughter came to my house before she even went home.  So we ended up watching some thriller on Netflix in my queen sized bed.  Did I mention I really need a bigger bed?


    Today is the Canadian Thanksgiving.  I have no clue why we have a different date than the US.  My husband did tell me that we have to pick up a couple turkeys after the US Thanksgiving because some turkey with “honey” in the name is the best turkey ever.  My husband gets all these recipes and cooking advice from his coworkers.  That’s a good think because we’d starve otherwise.  My mom and grams are coming over for dinner and because my son is working today we’re having dinner at a normal dinner time.  It smells so yummy in the house.

    Our Wedding 1995
    Yesterday was my husband’s and I’s 21st wedding anniversary.  Somehow, I thought it was our 20th.  Facebook reminded me that I wished him a happy 20th last year.  What did we do?  Nothing, nada, zilch because I didn’t want to leave the house due to pain.  He went to the Spitfires game on his motorcycle and froze his tush off on the way home.  My girlie actually watched Once Upon a Time with me as a homework stalling technique I think.  I’ll take it.

    with the kidlets, gramma, gram-mim and poppa jack
    Today is also bittersweet as we all gather for thanksgiving it’s also the day my Poppa Jack passed away eight years ago. Holiday meals always made me think of him and dessert.  We have Mayberry slices of desserts, little bit of turkey and the trimmings and two desserts, what’s wrong with that?  My son was in charge of buying desserts, yeah I don’t bake either.

    I’m still thankful for my family, friends, the pupalups, a roof over our heads, turkey sandwiches for the next week and LOVE!  Oh and wine, thanksgiving is a good day to have a glass of wine!


    How was your weekend? Any plans this coming week?

    Journey with me … mini2z

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