Sleep? What is that?

I have never-ending fatigue, body aches and pains.  Today I have two spots that aren’t joints that feel like a needle is being stabbed into me. Like a sting but there is nothing there. My Fitbit said I slept for 1 hour and 43 minutes.  So I got up, had some grapes and took some […]

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The Beginning of my Journey

      Originally published in 2015:   It’s Thursday and I usually do Thursday thoughts but I don’t know if my brain can function to put enough thoughts to make sense. Today my be just my ramblings… I’m so thankful that I have an amazing family who has been here for me every step […]

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Spoons needed

Today is an extra spoon day.  Why does showering exhaust me so? I have a rash on my right hand and left elbow from the lupus.  It’s really strange but it’s a normal symptom, I get blister like things and then they scar.  This is so much fun – NOT! We had a storm last night […]

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