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    Sleep? What is that?

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    If only we could sleep like dogs


    I have never-ending fatigue, body aches and pains.  Today I have two spots that aren’t joints that feel like a needle is being stabbed into me. Like a sting but there is nothing there.

    My Fitbit said I slept for 1 hour and 43 minutes.  So I got up, had some grapes and took some medication to ease the pain a bit hopefully.  I had been getting good at sleeping mostly through the night except for the odd pee break.  The not sleeping was one of my symptoms in the very beginning that I attributed to shift work but now I know it’s my illness.  The funny or not so funny thing is I will sleep for two days straight two or three days in a week.  Maybe it’s because I’m coming out of a two-week long migraine.  I don’t know but nothing seems to have any rhyme or reason with chronic illnesses.

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    I’ve had a strange pain my right foot like I used to have before I had surgery on both my feet in January of 2015.  I went to the Podiatrist today and she’s recommended an X-ray to see if one of the screws from the fusion has moved.  So added call family doctor for X-ray, massage prescription and the mammogram that hasn’t been scheduled yet.  Thankful for my planner and my iPhone with Suri adding reminders for me.  If I don’t add them right away, it’s gone, like poof and I don’t get it back.  Fibro Fog and Lupus Brain Fog are true issues.

    The Featured Image is an antique bench I found at the flower store I popped into between two doctor’s appointments.  The bench was what I wanted for that spot when I realized that the pupalups really liked just standing there and watch the world go by and the mailman comes by.  I saw a photo on a local antique place for a a similar bench but my sister in law said she didn’t see it that day.  So seeing the bench in the display drapped with pillows was just what I wanted.  I asked, the called the owner and the owner said it needed work because it was unsteady.  The price was $50.00 and I said YES.  My hubby is a hobby woodworker and I know he can make it steady for human seating.  I called the boys and they came to pick it up and brought it home while I went to my next doctor appointment.  I consider it a bigger win because my hubby liked it and said he can fix it.

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    teens don’t care that you’re blogging

    Still waiting for word on when I go to the nerologist but I have a the new massage prescription.  I’ve called and made the reservation for my car to be serviced next week. She’s not impressed at having to get up at 8am but she can come back home to sleep, she’s a teen and they sleep well.  Now if I could sleep like the teen and the pupalups. Yeah, who am I kidding because that’s not happening.

    How much sleep do you get during a normal night as opposed to a flare?

    Journey with me … mini2z

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    The Beginning of my Journey

    my journey with autoimmune illnesed

     

     

     

    Originally published in 2015:

     

    It’s Thursday and I usually do Thursday thoughts but I don’t know if my brain can function to put enough thoughts to make sense. Today my be just my ramblings…

    I’m so thankful that I have an amazing family who has been here for me every step of the way with this journey of finding my new normal of life with a Chronic Illness.

    If you’re just reading this for the first time I had been diagnosed with Hashimoto’s Thyroid disease back in 1994 when I was pregnant with my son. The specialist gave my a prescription and said I’d start to feel better in a few weeks BUT I do remember him saying my antibodies were almost 600000, yes SIX HUNDRED THOUSAND! That’s not normal even with Hashimoto’s I would come to learn. I had no idea that other than the fatigue and hair falling out was there any more issues I would need to be worried about. It wasn’t until years and years later that I would learn that my thyroid wasn’t controlled with that one little pill.

    I learned a few years ago that I wasn’t being controlled properly with Synthroid and I was having more and more symptoms. One of those symptoms was depression and it was just the blues here and there and I fought through it without knowing what it really was or admitting it to myself.

    After my son, we lost a baby but not in the usually way of a miscarriage. I had to go and have a missed miscarriage. What is that you ask? Well, I was there for my 12-week ultrasound at 13 weeks and all excited to see my baby on the screen. The tech turned the screen quickly and I knew something was wrong. We were quickly sent to my doctor’s who had the task of explaining that our baby stopped growing somewhere between six and seven weeks but my body had not done its job and was holding onto a not viable pregnancy.  I went to the hospital the next day and was no longer pregnant, I didn’t really grieve either and just hugged my toddler and ploughed on. You’ll get over it, they said. Well, it’s 19 years later and it still makes me cry.

    Map Life is a Journey

    We got the okay to try again and we got pregnant right away. At 7 weeks, it was all so new I woke up at 5 am and knew I’d had a miscarriage. We went to the doctors, the to the hospital where I had an ultrasound and had been informed that I would get to go home or be admitted. Well, they sent me back to my doctor’s with a sealed envelope. The doctor came into the room and was kind of shocked as to why we were there. My doctor read the letter and said, well you’re still pregnant! My husband asked how? The doctor calmly said, you lost a twin but the baby is still in jeopardy and you will need bed rest and ultrasounds every two weeks followed up at the doctors. We were in shock and it wasn’t until last night when my healthy beautiful daughter asked me if we grieved did I really think about it and my truthful answer to her was no we didn’t. For months we thought about it but we wanted to keep her safe and sound until she was ready to be born.

    Right now, that beautiful baby is an 18-year-old woman and I love her to the moon and back but every time I see twins, I think of my angels in heaven.

     

    My Angels on Earth

    Update:

    I just found out that my youngest is considered a Rainbow baby.  A “rainbow baby” is a baby that is born following a miscarriage or stillbirth.

    In the real world, a beautiful and bright rainbow follows a storm and gives hope of things getting better. The rainbow is more appreciated having just experienced the storm in comparison.

    The storm (pregnancy loss) has already happened and nothing can change that experience. Storm-clouds might still be overhead as the family continue to cope with the loss, but something colourful and bright has emerged from the darkness and misery.

    In the real world, a beautiful and bright rainbow follows a storm ... Click To Tweet

    Thyroid disorders have so many symptoms with fatigue and miscarriage are only a couple of those symptoms. There are over 300 hundred and Hypothyroid Mom has compiled a list and you should check it out…  http://hypothyroidmom.com/300-hypothyroidism-symptoms-yes-really/

    It wasn’t until four years ago that I started fighting for my right to try a different medication with my Endocrinologist. Doctors don’t like having a patient bring papers in with research but I did.  He allowed me to “try” Thyroid by Erfa at 90 mgs and it was changed to the 125 mgs six months later and that has been my dose for the past few years. My T3, T4, Free T3, Free T4 are all within range and antibodies still run amok but nothing like 600K.  I knew something was wrong with me when I still felt like crap which lead to more tests and my life today with not only Hashimoto’s but LADA, Lupus and Fibromyalgia.

     

    My Story Isn’t Over Yet;

    Dedicated to My Angels on Earth, Travis and Sierra and my angels in heaven.

    Journey with me … mini2z

    update

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    Spoons needed

    TodayFeatured Image -- 1567 is an extra spoon day.  Why does showering exhaust me so? I have a rash on my right hand and left elbow from the lupus.  It’s really strange but it’s a normal symptom, I get blister like things and then they scar.  This is so much fun – NOT!

    We had a storm last night and my hubby woke up and somewhere in there he told the youngest girlie that she could have a fish tank.  Once I woke up, I said NO but daddy said she could. She had one before and it was never cleaned but she’s very stubborn and went an bought one.  She got the accessories to go with her so far worldly travels and a turtle.  She’s 17 and on a turtle fascination recently.  She will be picking up “sacrificial” fish later tonight.  I do have to say it looks nice.

    I’ve been having regular migraines with the concussion therapy but he’s seeing LOTS of progress in me already.  I have two apps that I had to download to my phone to do exercises with.  The one makes the dogs go crazy because it’s a frequHoodieency thing. The other is a metronome that I have to work on coordination on my left side.  I’m already able to do some things that I wasn’t able to do when I was first tested.

    The hoodie that I wanted on yesterday’s post, well the hubby said to go ahead and order it.

    With so much going on right now, doctors, weddings, meetings and phone calls with not so great news, I’m need of just a billions spoons.

    I’m asking for some extra prayers or positive thought for tomorrow.

    journey with me…mini2z

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