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    Thursday Thoughts

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    Thursday Thoughts I link up with Jennifer at Ramblings of a Suburban mom:

    This Thursday has me thinking;

    • Wow, I’m a member of Chronic Illness Bloggers and I’ve had my first post shared through the network.  I’ve had tweets re-tweeted and it’s pretty cool for a little blogger like me.

    • It’s Thursday and I’m wondering how that happened?

    • I’m so thankful to my family for all the support and especially my husband.  Even with me having my shots on Tuesday afternoon and forgetting it was already time for them.  My hubby hurt his foot and we went to urgent care, x-rays and back home. Thankfully we had crutches in the house from all my falls.  His foot isn’t broken but we’re not quite sure what’s wrong.

    • Is it bad that I’m actually looking for my Gastroenterologist appointment next week? How bad it is when you want someone to figure out why you’re constantly nauseous and have stomach pain and none of your other doctors have an answer other than it’s lupus or fibromyalgia related…

    •  I’m trying to get one of my kidlets to go to the grocery store.  Seriously, they eat the food too, they should help out…

    Are you a Blogger and blog about your illness?  Join us on the Chronic Illness Blogger Network!  Are you a business and think that you’d like to get your products out to people with Chronic Illnesses well there is spot for you too!  Check out  http://chronicillnessbloggers.com/ for more information.

     

    Journey with me … mini2z

    update

    ©mini2z

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    How are you?

    Hi, how are you?  How do you answer this?  Honestly? Say good or okay?  Taking it day by day?  Seriously what answer do people want to hear?

    I had occasion to go to an event with my kidlets on Friday night to celebrate 30 years of Irish dance in the city.  My kidlets were there to see their old friends, teachers and parents that they spent so much time with for 11 years for my son and 14 years for my daughter. I was an Irish Dance mom but we use the word MAID or Mother’s Addicted to Irish Dance and I was on the executive of the booster club for 9 of those years. I almost backed out of not going because it’s been such a bad go of it but I started to get ready and committed myself to go. I know my husband was happy I went and that I’d get to see my friends.

     

    Kidlets and me 

     
    So here comes the, Hi How Are You?  How did I answer?  So many ways…

    • I’m good (total lie)

    • I’m okay (I was in the beginning)

    • Day by Day (it how I live now)

    • Anxious (but then I’d explain because “I don’t LOOK sick”)

    A lot of the people I saw had no idea I’ve been sick and off work for over a year.  Lupus and Fibromyalgia have kicked my ass more than I remember Hashimoto’s ever did.  Or I’m not remembering because I had small children.  I do know and remember towards the end of my daughter’s dance career I wasn’t able to do as much as I once did and I upset her with missing performances and events that I never would have missed but I was home in bed.  We didn’t know at the time what was wrong but the last few years was the lupus creeping into my body and taking its hold.

    I did answer lots of questions because I was originally sick when the diabetes took hold but I still think that the lupus has been here since then.  I had a bug and just never got better, my sugars went out of whack and the almost three years of every bug and constant fevers and flu like symptoms continued.

    To have a few hours out with my kidlets, enjoying some wonderful Celtic music and watching the Ardán Academy Irish dancers is always nice.  The dessert table was pretty awesome too.  There was coffee but no tea?  A cèilidh (gathering) should always have tea along with the beer and whiskey!

    Where am I today?  Two days after the few hours out?  I’m in bed?  Did I know that I’d use up today’s spoons yesterday by going out?  Yes but it was worth it.

    How am I?  I take it day by day because my invisible illnesses have kicked my ass.  I really want to answer honestly but people look at me in shock, surprise, befuddled, confused, so I really just answer I’m Okay.

    So how are you?

    Journey with me … mini2z

    ©mini2z

     

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    Spoons needed

    TodayFeatured Image -- 1567 is an extra spoon day.  Why does showering exhaust me so? I have a rash on my right hand and left elbow from the lupus.  It’s really strange but it’s a normal symptom, I get blister like things and then they scar.  This is so much fun – NOT!

    We had a storm last night and my hubby woke up and somewhere in there he told the youngest girlie that she could have a fish tank.  Once I woke up, I said NO but daddy said she could. She had one before and it was never cleaned but she’s very stubborn and went an bought one.  She got the accessories to go with her so far worldly travels and a turtle.  She’s 17 and on a turtle fascination recently.  She will be picking up “sacrificial” fish later tonight.  I do have to say it looks nice.

    I’ve been having regular migraines with the concussion therapy but he’s seeing LOTS of progress in me already.  I have two apps that I had to download to my phone to do exercises with.  The one makes the dogs go crazy because it’s a frequHoodieency thing. The other is a metronome that I have to work on coordination on my left side.  I’m already able to do some things that I wasn’t able to do when I was first tested.

    The hoodie that I wanted on yesterday’s post, well the hubby said to go ahead and order it.

    With so much going on right now, doctors, weddings, meetings and phone calls with not so great news, I’m need of just a billions spoons.

    I’m asking for some extra prayers or positive thought for tomorrow.

    journey with me…mini2z

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