Hi, how are you? Â How do you answer this? Â Honestly? Say good or okay? Â Taking it day by day? Â Seriously what answer do people want to hear?
I had occasion to go to an event with my kidlets on Friday night to celebrate 30 years of Irish dance in the city. Â My kidlets were there to see their old friends, teachers and parents that they spent so much time with for 11 years for my son and 14 years for my daughter. I was an Irish Dance mom but we use the word MAID or Mother’s Addicted to Irish Dance and I was on the executive of the booster club for 9 of those years. I almost backed out of not going because it’s been such a bad go of it but I started to get ready and committed myself to go. I know my husband was happy I went and that I’d get to see my friends.
I’m good (total lie)
I’m okay (I was in the beginning)
Day by Day (it how I live now)
Anxious (but then I’d explain because “I don’t LOOK sick”)
A lot of the people I saw had no idea I’ve been sick and off work for over a year. Â Lupus and Fibromyalgia have kicked my ass more than I remember Hashimoto’s ever did. Â Or I’m not remembering because I had small children. Â I do know and remember towards the end of my daughter’s dance career I wasn’t able to do as much as I once did and I upset her with missing performances and events that I never would have missed but I was home in bed. Â We didn’t know at the time what was wrong but the last few years was the lupus creeping into my body and taking its hold.
I did answer lots of questions because I was originally sick when the diabetes took hold but I still think that the lupus has been here since then. Â I had a bug and just never got better, my sugars went out of whack and the almost three years of every bug and constant fevers and flu like symptoms continued.
To have a few hours out with my kidlets, enjoying some wonderful Celtic music and watching the ArdÃ¡n Academy Irish dancers is always nice. Â The dessert table was pretty awesome too. Â There was coffee but no tea? Â AÂ cÃ¨ilidhÂ (gathering) should always have tea along with the beer and whiskey!
Where am I today? Â Two days after the few hours out? Â I’m in bed? Â Did I know that I’d use up today’s spoons yesterday by going out? Â Yes but it was worth it.
How am I? Â I take it day by day because my invisible illnesses have kicked my ass. Â I really want to answer honestly but people look at me in shock, surprise, befuddled, confused, so I really just answer I’m Okay.
So how are you?
Journey with me … mini2z