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My Autoimmune Life

There is a great community of “spoonies” out there.  The Spoon Theory written by Christine Miserandino on But You Don’t Look Sick.  It’s an amazing article that explains you only get so many spoons a day and when you’ve used them up you’re done or out of juice for the day.

I have days where a shower is a major achievement.  I never realized that something I used to love so much could exhaust the crap out of me now.

My house looks like it’s a complete scene of chaos.  There is so much I want to do but I get started and run out of spoons for the day.

I’m plagued with non-restorative sleep and I have a witching hour or two between 2:30 am and 4:30 am where I routinely wake up and can’t get to sleep.  I’m exhausted and tired but sleep doesn’t come.

My autoimmune journey started 20 years ago with the diagnosis of Hashimoto’s Thyroiditis.  It’s where my body for some reason decided to think my thyroid was an invader.  My body will eventually kill my thyroid completely.

Next came Diabetes.  That visit was the first time I had heard that I was a LADA or a type 1.5 diabetic. A LADA doesn’t have the same issues as type 2 diabetic.  My endocrinologist said he considers me a progressing type 1 diabetic.  Meaning my body is attacking my pancreas and I will need insulin to survive.  So far diet change and three medications are keeping me  alive.

Recently after feeling like I’ve had the flu for year along with some crazy blood tests, a butterfly rash on my face that comes and goes, sores in my mouth and nose and swollen joints.  So that specialist finally diagnosed me with Lupus and Fibromyalgia.  He also sent me to another specialist who did a lot tests to check on my liver.  The term fatty liver disease and then Autoimmune Liver disease were thrown at me,  Follow up tests and appointment says no I don’t have any liver issues.

Depression is a symptom that comes with ALL the autoimmune diseases I have.  And I’m working on it.  I’ve learned three types of meditation.  I need to look into more places where I can work on the meditation.  I have a bunch of other issues that I’m not ready to talk about to the world yet.  I thought this might give you an idea of why some days I have a blog and then you don’t hear from me for a week.

So send me some spoons, a housekeeper, prayers or positive thoughts.

Journey with mini

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7 Comments

  • Reply annepm2015

    Mini, “Autoimmune Liver Disease” because I know all too well the effects autoimmune disease has on the body. I was diagnosed with Lambert-Eaton Mysthenic Syndrome four years ago after being diagnosed with breast cancer several months before. Infusions every four weeks keep me alive. They have for 4 years now. Best wishes and please keep in touch. Anne 🙂

    2015-05-25 at 13:47
  • Reply commandersheppard

    Reblogged this on commandersheppard.

    2015-05-25 at 16:07
    • Reply mini2z

      Thank you so much for the reblog. My first!

      2015-05-25 at 17:23
  • Reply sailingpenguin

    Sending you virtual spoons as that is all I have left at the moment, wish I had a housekeeper of my own lol, but I can certainly send some positive thoughts.

    Sharing one of my blog posts https://sailingpenguin.wordpress.com/2015/02/26/spoons-beans-and-the-science-of-crash-calculations/ as it is an alternative version similar to the spoon theory.

    Can I ask, when you were diagnosed with lupus what type of specialist did you see?

    2015-05-27 at 13:32
  • Reply sailingpenguin

    Oh didn’t add about the blog I shared (a bit of fibro fog), the reason for sharing was because I have found that some of my friends understand the spoon theory however there some that just don’t get it, but they get the little picture explanation of the beans.

    2015-05-27 at 13:34
  • Reply sailingpenguin

    Hi I know I commented yesterday on your blog but I wanted to tell you that I finally plucked up the courage to write all my symptoms down and give them to my GP, she discussed the possibility of lupus with me and has had some blood work done. I don’t think I would have done if I had not have read your blog yesterday and seeing that you have both Fibromyalgia and Lupus.

    2015-05-28 at 13:36
    • Reply mini2z

      Thank you so much for that.
      Rest if your body says rest
      I’m learning
      Thank you & so glad to be here!

      2015-05-28 at 21:30

    Thank you for visiting me at mini2z ... Journey with me and I hope to see you often xx

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