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Rough Times, Blog Changes, Sleep, Flares, Good Things

 

I hope you can tell but I’ve made some changes to the blog. I recently purchased a Chloe and Marc Theme on Etsy from a nice lady Mai, who installed it as part of purchase.  It worked out that she added the plugins that I requested.  I’m still updating a few things.  Today, after a few days of craziness getting my blog theme looking nice and a lot of headaches with remembering passwords.  The theme I bought was Chloe and Marc and it was on sale.  I love sales and they’re pretty awesome and I love the look and I hope you do too.   If you do see something that doesn’t look right, please let me know.  The whole reason I looked into buying the theme was because when I changed over from WordPress to self hosted my blog looked a mess.  I wasn’t happy where things were and I like neat on some things.  My life is chaos so this is a little part I can control with a lot of saving and closing my computer.

I may have lupus but lupus doesn't have me

I’ve had a rough couple weeks with chronic pain.  It’s a searing pain that is in my hips, back and legs.  The itchiness has come back and the nausea is unbearable.  My food consumption is very minute on what I can stand to eat.  Milkshakes, smoothies, citrus and toast are about all that I’m able to tolerate.  I’m an avid tea drinker and I have gone two days without any tea.

Lupus has had me basically in bed, sleeping, not sleeping Click To Tweet

Lupus has had me basically in bed, sleeping, not sleeping.  I try to remember me as I used to be when I was able to do anything I wanted to without wondering will I need to rest?  Can I walk through the store to get groceries?  This life of chronic illness has taken so much away from me and I wonder when I will get a break?

I’ve seen most of my doctors in the last week and a half and it’s basically stay the course for me.  No medication changes or any tests from them in the next two weeks yeah!  I do have one more doctor appointment and its with my gastroenterologist .  I’m still waiting to see the Neurologist who is the doctor for the chronic pain and the migraines. I do have to get a follow up urine test for protein in my urine.  The fact that I had one test with proteins in my urine is concerning enough and las week was crazy, more on that in a minute.  Moods have been the same level of blah. It’s true that pain causes you to be depressed and the depression makes you think of the pain more as well.

The world awaits turtle in Curaçao

My daughter (who will always be my baby kidlet) last week started college in the Registered Practical Nursing program. Wednesday a call was received and she received a spot in the Bachelor of Science Nursing Program.  I text her, she says she’s in class, I try to explain you need to leave class and call the director back now!  So she went to school in the RPN and came home in the BScN program.  She sold most of her books the next day, she was also able to purchase most of the new ones she needed as well.  I did buy a “code” for over $150, yes a code, the book cost her more money but the code was an insane amount.  Her first day was the Friday and she came home happy.  I knew that she was happy in the RPN but it wasn’t her dream course. Now having a nurse to take care of momma and daddy in the future is a good thing.

BScN
Things have been crazy for me with doctors, lupus flare, computer issues and I hope you’re all well.  I’m hoping for some more normal days ahead, at least what’s become my new normal.

Journey with me … mini2z

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Thank you for visiting me at mini2z ... Journey with me and I hope to see you often xx

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