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autoimmune disease

    Update on my But I Am Sick page …

    I currently have three autoimmune diseases and they are also invisible illnesses.

    I currently have three autoimmune diseases ... Click To Tweet

    Hashimoto’s Thyroiditis

    In 1994 when I was pregnant with my son I received my first autoimmune diagnosis for Hashimoto’s Thyroiditis.  I saw an endocrinologist when I was pregnant and then he dismissed me after.  I’ve only been under my family doctor’s care for most of the time.

    Type 1.5 Diabetes or Latent Autoimmune Diabetes in Adults or LADA

    In April of 2012, I received a diagnosis of Latent Autoimmune Diabetes in Adults or LADA as a short form.  I was first diagnosed as a type 2 but when I saw my new endo I was then told I was a LADA or a type 1.5 or a progressing type one. I had never heard of it but it’s the adult version of diabetes it just takes everyone a different amount of time for the body to kill the pancreas. I am currently on three different pills to control diabetes and have been begging for insulin for about a year now.

    Lupus

    In November of 2014, I was finally diagnosed with Lupus SLE.  It had been three years of feeling like I have the flu. No one test or person is the same with Lupus and mine seems to not like my liver. I get only a faint butterfly rash on my face and it comes and goes.  I’ve had times where I’ve slept for two days straight and taking a shower means I have to nap afterwards sometimes. I’ve been delayed being put on Plaquenil because of the liver issue that isn’t an issue.

    Fibromyalgia

    This is my Rheumatologist’s catch-all for my other symptoms.

    Chronic Pain

    I have chronic pain in my whole body.  I have it really bad in my joints from lupus and fibromyalgia.  I’m currently undergoing some nerve therapy shots to my back, hips and SI joints.

    Chronic Migraines

    My migraines have plagued me since I was in my early 20’s.  I got my first one about a month after a bump to the back of my head.  To this day my migraines still occur in that spot.  I’ve written a blog about the story of my migraines.  My current treatment is receiving Botox.  You can view that here.

    But I am sick, a diary of my invisible illnesses …

     

    Journey with me … mini2z

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    PillDrill a Fun New Medication Management System

    “I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. ”

     

    PillDrill a Fun New Medication Management System

    Opening the Box

    I was never so excited to receive an acceptance from a campaign because I really really wanted to try the PillDrill.  It arrived very quickly from the time I was approved.  Due to illness, which is why a lot of my blog is about Chronic Invisible Illness, I didn’t pick up my mail for a few weeks.

    It was really easy to set up. Even my mom could set it up for herself if she wanted to.  I knew where I wanted to put the device portion and I had to clean up my nightstand in order to do so.  Nightstands and illness can be a dumping ground! Instead of plugging it into an outlet, I plugged it into my USB hub that has four ports in it.  Even with an iPhone, iPad, Fitbit all plugged in, the Pill Drill did not overload the hub.  The instructions said to let it charge for a couple hours so I left it alone and then set it up later in the day.

    Basic set up was EASY!  My mom is very technologically terrified and I know she could set it up. (Yes mom, you could!)  I downloaded the Pill Drill App to my iPhone.  It’s available for Android too.  I’ve just checked and you can download the app on your iPad as well.  I like to think I’m tech savvy and it was a breeze.

    Top: on my nightstand, Bottom Left: My previous mess of medications, Bottom Right: All organized for the week and all my morning pills showing in the pod

    I was worried that all my pills wouldn't fit into the pods but they do! Click To Tweet

     

    I was worried that all my pills wouldn’t fit into the pods but they do!  I take 12-15 in one full swoop first thing in the morning.  I didn’t put my nausea medications into the pods because I tend to take them earlier than my other medications most days.  I only used the one strip for a couple weeks and now I’m using one for the morning and one for bedtime.  I also have an alert set up for my bedtime medication more on that in a bit.

     

    Compatible with any type of health regimen.

    Keep your medication in its original packaging? Our scanning tags attach to pill bottles and irregularly shaped items alike. Use a weekly pill organizer? Ours was custom-built for superior ergonomics and compatibility.  There is no one size fits all with medication, so whatever the specifics of your regimen PillDrill has you covered.                                                                                source:  PillDrill

     

    There are a few things I’d like to see changed or upgraded somehow:

    • The light – there is no way to dim it completely
    • The Sound the unit makes to give you notifications – it gave me bad hospital memories.  I’d like to be able to change it somehow.  One of my two dogs absolutely went nuts at the sound, the other it didn’t bother her.
    • I think that the unit could be a bit smaller.
    • A way to keep the strips together for travel.

    What I loved:

    • Ease of use, unit, the app, the strips and pods.
    • The mood cube is seriously the best and a fun way to track your moods, how you’re feeling
    • The color is my favorite blue
    • The notifications on the app via my iPhone was perfect.

    What I didn’t use:

    • the scanning tags and holders

     

    Video courtesy of The PillDrill’s website

    Overall I loved the PillDrill and will keep on using it.  Its price is steep but with all inventions, you can hope if comes down. I didn’t travel anywhere so I don’t know how the strips and pods would fair in my hectic packing.  I happened to be at the hospital getting some tests done and my app let me know I needed my pills and I was able to pause them until I got home.  I can only think of what my poor dog Ranger was doing because he hated it and would let me know the second that it went off to turn it off.

    I hope you enjoyed my review of The PillDrill.

     

    Journey with me … mini2z

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    Where Oh Where I Have I Been?


    Where Oh Where I Have I Been?

    I haven’t written a proper blog since December.  I can only think that I haven’t felt like writing because of my depression.  I have always loved Christmas and the holiday season but since I’ve been battling with all these illnesses is the reason that I haven’t found my new normal.  I’m trying to find the balance but I don’t feel like I’m there yet. Christmas was an amazing time with my family.  We spent Christmas Eve at my mother-in-law’s and Christmas my mom, gram and mother-in-law came to our house.  I spent the next few days recovering because I should have napped both days but I pushed my body too much.

    I finally saw a neurologist just before Christmas.  He spent almost an hour doing the check up and prescribed a medication that I had to try before my insurance would pay for the botox.  The botox will be in three spots on my head.  I’ve also been referred for two MRI’s of my head, back and hips.  The hope is that they can do both of the MRI’s together so I don’t have to go into the machine twice.  I am claustrophobic so two tests won’t be fun for me. March 6th will mark the first and hopefully my only MRI but I know I can handle two being mildly sedated for them at the very least.

     

     

    I posted this on my New Year’s Post but I don’t make “resolutions” as I will always break them.  I will list some things I’m going to work on doing better, (working on) though:

    • budgeting – meal planning, cut back on spending (subscription boxes)
    • blog on a sort of set schedule for me – sponsored blogs yeah they get done but personal ones go on the back burner
    • walking and yoga – again it’s not something that I can schedule but I’d like to have someone walk with me with the pupalups and get to yoga once a week
    • keep getting better rest and sleep – it has improved but the painsomnia can’t be helped
    • not feel guilty for what I can’t do – that’s a hard one but working on it every day
    • try to get my nails in order, take medications on time (more on that in a couple months)
    • get to the dentist to get the work the work that needs to be done.

     

    Today is Family Day in my province of Ontario, Canada.  It’s a relatively new holiday created so there was a day off between Christmas and Easter.  It’s February 20th and it’s already 48 degrees out.  My dogs aren’t complaining about wanting back in after two seconds outside.  We had record high temperatures on Saturday.

    On Saturday, I finally received the call from the pain clinic.  I have my two appointments. The first is approximately 1.5 hours with twelve pages of documents to fill out.  The second appointment is about two hours.  She asked if the dates would work and I said, no matter what I’d work it out because I’ve been waiting for these for almost a year.

    I hope you’ll grab a cuppa tea and continue on this journey with me.

    mini2z

    mini2z journey with me

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