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autoimmune disease

    After The Storm

    After The Storm

    Somewhere, in my memory box is a poem called After The Storm that I wrote. I haven’t found that box and hope it survived our flood.  It also makes me think of the poem, After a While by Veronica A. Shoffstall and the blog I wrote featuring it titled: Hopeful.  

    What does this have to do with After the Storm?  Well, I will find the poem but the storm for me has been my health but more recently we experienced a catastrophic rainstorm.  We had almost seven inches of rain in less than three hours.  As a result of this storm, we flooded, in our yard and then in the house.  We also got rain from the roof that leaked as a result of the catastrophic windstorm in March.  (that’s another rant)

    Photo from the Windsor Star – link on photo

    What the Ditch/Drain is like normally

    We have this check valve or back up valve that is installed so we don’t get water.  Well, the valve failed.  At first, the water was just in the yard, on the street but then it came rushing up the drain in the floor.  When we moved into this house, it was covered with tinfoil.  The only water we’d had in 22 years was when the hose broke on our washer when we were out at a birthday party.  We have a wet/dry vacuum but it would fill in seconds but our son brought home a sump pump, then our son went to my grams to get her spare sump pump.  We had two pumps going in the basement and we were able to keep it to about 3-4 inches when our neighbours had a foot to a foot and a half of water.  On top of all this, we were getting leaks in the bathroom and kitchen.  The kitchen isn’t so bad but the bathroom is another story.  Our insurance company, Allstate, has been great.  Our basement is covered to our maximum allowed and because we did so much of the hauling of the wet and severely smelly carpet, boxes and clothes out to a bin we ordered, we will not have to pay the deductible.  The roof that was supposed to be replaced after March is now going back to the insurance company to reassess the damage because it now includes water damage that shouldn’t have been there.  We are waiting on that.  After the storm, we already have the cheque from Allstate and can start to put this part of our life back together.

    L-R, Backyard Lake, Flooded Road, Flooded basement, first pile of wet, soggy basement items, The Sasso Bin with load #2, the Red Sky at Night After the Storm

     

    I’m also working on my health.  My health storm isn’t over but I’m choosing to find the balance.  I’ve become a doTerra Wellness Advocate to save money on essential oils for my personal use but it’s become so much more to me.  I can look in every room of the house that and see doterra products, be it oils to shampoo, to soap to a diffuser or two.  Slowly, I’m adding more and more natural, healthy for me items into my life.  I’m excited about doterra and the direction it’s heading for me.  I have my now too small box of oils, a larger one is on my Amazon wishlist!  I have doterra products all over the house now, hand cream that is not greasy, soap and shampoo in the shower.  I plan on making my own bath bombs because the store bought ones are just too strong for me.  I have lemon and wild orange on my window sill for adding to water.

    I’m still getting nerve block shots in my head, neck, back and SI joints weekly.  The hope is to be able to go every two weeks soon.  I have scheduled the appointment to see my Endocrinologist so that we can all work to trying the LDN. I have every doctor on my team visits in the next two weeks, after trying to only schedule two per week.  It is actually exhausting getting ready, getting there on time only to wait for long periods of time.  I have been really out of sorts and finally figured out that I was doubling my iron pills and not taking my antidepressant.  Yeah, that was a really stupid thing.  Lesson learned, look at the actual label before filling up your Pill Drill for the week.  Our new mattress set will be delivered on Friday, so we are hoping for a great night’s sleep.

    Sleep, I need sleep, it’s just been so exhausting.

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    Update on my But I Am Sick page …

    I currently have three autoimmune diseases and they are also invisible illnesses.

    I currently have three autoimmune diseases ... Click To Tweet

    Hashimoto’s Thyroiditis

    In 1994 when I was pregnant with my son I received my first autoimmune diagnosis for Hashimoto’s Thyroiditis.  I saw an endocrinologist when I was pregnant and then he dismissed me after.  I’ve only been under my family doctor’s care for most of the time.

    Type 1.5 Diabetes or Latent Autoimmune Diabetes in Adults or LADA

    In April of 2012, I received a diagnosis of Latent Autoimmune Diabetes in Adults or LADA as a short form.  I was first diagnosed as a type 2 but when I saw my new endo I was then told I was a LADA or a type 1.5 or a progressing type one. I had never heard of it but it’s the adult version of diabetes it just takes everyone a different amount of time for the body to kill the pancreas. I am currently on three different pills to control diabetes and have been begging for insulin for about a year now.

    Lupus

    In November of 2014, I was finally diagnosed with Lupus SLE.  It had been three years of feeling like I have the flu. No one test or person is the same with Lupus and mine seems to not like my liver. I get only a faint butterfly rash on my face and it comes and goes.  I’ve had times where I’ve slept for two days straight and taking a shower means I have to nap afterwards sometimes. I’ve been delayed being put on Plaquenil because of the liver issue that isn’t an issue.

    Fibromyalgia

    This is my Rheumatologist’s catch-all for my other symptoms.

    Chronic Pain

    I have chronic pain in my whole body.  I have it really bad in my joints from lupus and fibromyalgia.  I’m currently undergoing some nerve therapy shots to my back, hips and SI joints.

    Chronic Migraines

    My migraines have plagued me since I was in my early 20’s.  I got my first one about a month after a bump to the back of my head.  To this day my migraines still occur in that spot.  I’ve written a blog about the story of my migraines.  My current treatment is receiving Botox.  You can view that here.

    But I am sick, a diary of my invisible illnesses …

     

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    PillDrill a Fun New Medication Management System

    “I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. ”

     

    PillDrill a Fun New Medication Management System

    Opening the Box

    I was never so excited to receive an acceptance from a campaign because I really really wanted to try the PillDrill.  It arrived very quickly from the time I was approved.  Due to illness, which is why a lot of my blog is about Chronic Invisible Illness, I didn’t pick up my mail for a few weeks.

    It was really easy to set up. Even my mom could set it up for herself if she wanted to.  I knew where I wanted to put the device portion and I had to clean up my nightstand in order to do so.  Nightstands and illness can be a dumping ground! Instead of plugging it into an outlet, I plugged it into my USB hub that has four ports in it.  Even with an iPhone, iPad, Fitbit all plugged in, the Pill Drill did not overload the hub.  The instructions said to let it charge for a couple hours so I left it alone and then set it up later in the day.

    Basic set up was EASY!  My mom is very technologically terrified and I know she could set it up. (Yes mom, you could!)  I downloaded the Pill Drill App to my iPhone.  It’s available for Android too.  I’ve just checked and you can download the app on your iPad as well.  I like to think I’m tech savvy and it was a breeze.

    Top: on my nightstand, Bottom Left: My previous mess of medications, Bottom Right: All organized for the week and all my morning pills showing in the pod

    I was worried that all my pills wouldn't fit into the pods but they do! Click To Tweet

     

    I was worried that all my pills wouldn’t fit into the pods but they do!  I take 12-15 in one full swoop first thing in the morning.  I didn’t put my nausea medications into the pods because I tend to take them earlier than my other medications most days.  I only used the one strip for a couple weeks and now I’m using one for the morning and one for bedtime.  I also have an alert set up for my bedtime medication more on that in a bit.

     

    Compatible with any type of health regimen.

    Keep your medication in its original packaging? Our scanning tags attach to pill bottles and irregularly shaped items alike. Use a weekly pill organizer? Ours was custom-built for superior ergonomics and compatibility.  There is no one size fits all with medication, so whatever the specifics of your regimen PillDrill has you covered.                                                                                source:  PillDrill

     

    There are a few things I’d like to see changed or upgraded somehow:

    • The light – there is no way to dim it completely
    • The Sound the unit makes to give you notifications – it gave me bad hospital memories.  I’d like to be able to change it somehow.  One of my two dogs absolutely went nuts at the sound, the other it didn’t bother her.
    • I think that the unit could be a bit smaller.
    • A way to keep the strips together for travel.

    What I loved:

    • Ease of use, unit, the app, the strips and pods.
    • The mood cube is seriously the best and a fun way to track your moods, how you’re feeling
    • The color is my favorite blue
    • The notifications on the app via my iPhone was perfect.

    What I didn’t use:

    • the scanning tags and holders

     

    Video courtesy of The PillDrill’s website

    Overall I loved the PillDrill and will keep on using it.  Its price is steep but with all inventions, you can hope if comes down. I didn’t travel anywhere so I don’t know how the strips and pods would fair in my hectic packing.  I happened to be at the hospital getting some tests done and my app let me know I needed my pills and I was able to pause them until I got home.  I can only think of what my poor dog Ranger was doing because he hated it and would let me know the second that it went off to turn it off.

    I hope you enjoyed my review of The PillDrill.

     

    Journey with me … mini2z

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