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    Feeling Lost

     

    I’m okay, I’ve been feeling completely lost …

    I’ve been feeling completely lost. I’ve been playing it’s not anything, just my sugar, just my blood pressure but something is wrong. Today I go and get a heart monitor that I have to wear for the next two weeks.  I go after a week to have it read and schedule more tests.  My daughter seems to think that I have an arrhythmia of some sort and I will need a pacemaker, that’s the nurse in her speaking I’m guessing.  She’s the type of matter of fact speaking her mind person.  You see, she’s been with me for a few of my most recent fainting, shaking episodes. Two of those episodes were in a few short hour time span.  I get dizzy, sound is very distorted or I can’t hear at all, my vision goes blurry, I get a tingling in my arms and hands, I can’t stand, I’m tired and after I’m tired and my head hurts.  This scares the crap out of me  My blood sugar levels have been within normal ranges and my blood pressure levels have been within normal ranges so testing my heart it is.

     

    I’ve retreated so far into me that I feel lost

     

    If you just stumbled onto my ramblings, then welcome.  I’m a Chronic Illness warrior fighting Lupus, Fibromyalgia, Chronic Migraines, Chronic Pain, Diabetes and Hashimoto’s Thyroiditis and to top it off, I am battling with depression and anxiety. I haven’t written a blog in a few weeks because of that depression and the feeling lost.  Writing has always been my escape but I couldn’t seem to bring myself to write.  Seems like I get two steps ahead and then four steps back with no end in sight.  The goals have been to get me stable and see how things go.  Well, it’s been over two years since I’ve been off of work and I miss working.  I know I can’t work the way I am with any of my issues, hell I can’t even read and remember what it was I was reading.  My anxiety is lower but I haven’t driven much in the past two years and currently, I’m terrified that something will happen to me if I drive.  I’m alone a lot of the time and I like people, I like talking to people and I miss that interaction.  I’ve retreated so far into me that I feel lost even after two years of treatment.

    I hate needles ... I needed to try Click To Tweet

    I’m working on a blog about the Therapeutic Nerve Therapy that I’ve been getting at the Pain Care Clinic but I’ll share a brief description.  I started out ten weeks ago but I’m on week eight of getting shots.  The shots started out in my spine and in the lower back and they’re directly in the nerves.  Oh, I hate needles but if it was going to give me relief (it has some) then I needed to try.  The doctor running the trial is amazing.  I like him and he’s informative about all the side effects, adjusts the sites as needed and increased the sites as well.  He’s also given me some extra cortisone shots into my SI joint.  More on this form of torture and relief to come soon!

    I’m okay and not in a bad place in my head even with all that I’m dealing with.  I’m still mourning the loss of who I was while finding the new me.

    I hope you’ll come back and check out future blogs. I’ve received and will be receiving some products to try and even the pupalups will be getting some products to try as well, so I hope you’ll check those out too.

     

    Journey with me … mini2z

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    What’s A Flare Day Kit?  Huge Contest Sponsored by Chronic Illness Bloggers

    **NOTE: my blog does have affiliate links in the ads**

    What’s A Flare Day Kit?  A Huge Contest Sponsored by Chronic Illness Bloggers

    CIB Holiday Giveaway

    The giveaway runs November 23rd to December 3rd!  Please share with all your family and friends!  I hope you enjoy the blog and find some new blogs and products!

    Flare Day Kit or ER and Hospital Must Haves

    When I found myself going to the ER more frequently I threw a few things into a bag so that I’d have a more comfortable wait.  I can’t do anything about the horrible chairs that my ER’s have but I like being comfortable.

    • Baggu bag because it’s canvass and can be washed when I go home.  I always bring bottles of water and a bottle of ginger ale.  I have even had a juice box at times.  I know that if I have stomach problems that I can’t eat or drink but my caregiver can and the wait can be really long in my area.  I always have my S’well 25 oz bottle because it’s large and keeps my water cold.  Hydration is a problem for me because of constant nausea.
    • Colouring book and pencils in a pouch. I find it relaxing
    • Some hard candies because my mouth is dry and hospital air is brutal on dry mouth
    • A light blanket (sometimes two)
    • My Mophie Juice Pack – I keep it charged on my nightstand.  It powers my iPad, my iPhone and both of my hubby’s too.
    • A long cord for the iDevices and the wall plug for the iPad because the regular one only charges the phone and not the iPad.
    • Book because I like reading real books and I usually have a couple on the go
    • Earplugs – I get overwhelmed with sounds
    • Chapstick – back to the dry mouth and hospitals are dry
    • Moisturizer because you use so much hand sanitizer at the hospital
    • Sunglasses on migraine visits but now I’d bring my Axon glasses because well they’re amazing.

    My contribution is part of Prize pack 8 and I’ve listed what I’m including below this photo.  Later on, there is two photos with all the prize packs listed.  There are Eight prize packs, a Fibro prize pack and two packs that are just for the US entrants.  We have over 50 bloggers and sponsors participating in this cross blog promotion for the Chronic Illness Bloggers.  No purchase necessary.  But check out the list of bloggers and sponsors as there is something for everyone.

     

    Prize Pack 8 including mini2z

     

    What is in my part of Chronic Illness Bloggers Holiday Giveaway – Prize Pack 8?

    Everything here will keep you busy at the hospital (when you can) if you’re there for a few hours or a few days. Also good for a flare day or days because we chronic illness people have days when getting out of bed is very difficult.  So here is what’s in the portion of Prize Pack 8…

    • Tote bag – it’s washable!
    • Light blue plaid scarf that can be used as a light blanket by American Colors
    • Colouring book with Staedleter coloured pencils, Staedleter markers and pouch to put them in.
    • Chapstick
    • Power bank for a cell phone
    • Lavender hand cream
    • Fuzzy reading socks
    • Plastic Tumbler with a straw
    • Lemon Face mask
    • Green Tea and Tea (or any beverage) cup
    • Ice Pops mold maker and the recipe for nausea pops
    • Some candies
    • I could add extras before it gets mailed out!

    I’ve had fun getting the goodies for this gift pack and there is well over $150 in products for the lucky recipient of Prize Pack 8.

    What is in my part of Chronic Illness Bloggers Holiday Giveaway - Prize Pack 8? @ChronicBlogs #ChronicBlogs Click To Tweet

     

    Flare Day - Hospital Must Haves

    Flare Day – Hospital Must Haves


    **”This giveaway is sponsored by Chronic Illness Bloggers. Prizes have been donated by the following:”**

     

    13164893-5704-49c8-a230-bba582770dc0adbe3918-2155-4ba8-8f11-42aa1c116884

    The GIVEAWAY is via rafflecopter so good luck!

    http://www.rafflecopter.com/rafl/display/dde15f7712/? I added the clickable link just in case the widget was taking too long!.

    Good luck!  Hope you enjoy checking out the Chronic Illness Bloggers and our sponsors!  Chronic Illness Bloggers Network have become my friends in my journey of Lupus, Fibromyalgia, Chronic Pain, Migraines, LADA, Hashimoto’s, Gastritis, Depression, Anxiety and more important, I’ve got a great group of friends that are a keystroke away for support.

     

    Invisible illness sucks but having friends along the journey makes it more tolerable.   mini2z 

     

    Last peek…

     

    img_6320

    Journey with me … mini2z (don’t forget that sharing is caring!)

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    Journey with me …

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    Honey Colony Equalibrium Energy: My Trial With Superfood

    I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

     

    Honey colony equilibrium

     

    I received a jar of Equilibrium Energy from Honey Colony over a month ago.  It’s taken me so long to write because I’ve been in a flare, messed up blog site and computer problems.

    The package arrived to me safely and very well packaged.  The jar is 2.3 ounces or 66 grams.  The jar is a reusable Biophontonic Violet Glass jar.  (I had to look that up! It means the jar protects the contents from light).  I usually take photos of boxes as I’m opening them but for some reason I didn’t.  Packaging to make sure a product arrives to you is important and the package was the appropriate size.  Not an oversized Amazon box!

    So what is it?

    At the core of Equilibrium is raw honey. Eleven other potent superfoods are added—each one organic or wildcrafted, boasting numerous health benefits. The total 12 ingredients bring harmony to a life that may face stress, toxins, and negative energy.    Source: Honey Colony

    Jar of Equalibrium Energy

    So what’s in the superfood besides raw honey?

    The 12 ingredients are:

    Active Natural Prebiotics
    Phytoplankton
    Blue Algae
    Medicinal Mushrooms
    Double- Directory Adaptogenic Herbs
    ORMUS
    Ginger
    Organic Turmeric
    Raw Honey
    Bee Pollen
    Bee Propolis

    Honey Colony has a post about the 87 benefits of the ingredients in the Equilibrium Energy Superfood.  There is so much information on all the 12 ingredients on their website that I can’t do it justice in a blog post.

    Label of Equalibrium

    Photo Source: Honey Colony

    I started taking it right away. It is a dietary supplement and not a medical product. The directions are that you take a teaspoon in the morning on an empty stomach. When I wake up I have to take an antinauseant immediately and wait for it to take effect. I found that taking the spoonful and then having my morning tea was best for me. Some people have recommended having it in your tea. I was a afraid that if I did that I wouldn’t get all the benefits if it was diluted.

    I am very sensitive to textures and found it hard to take for the first two days. After that, I was able to take the spoonful and not complain about the texture.   Anyone who has ever been with me eating and seeing me freak out about mushrooms will know that I can’t even stand the thought of mushrooms even if they were puréed.  It was sweet and gritty kind of like the centre of a fig bar.  That’s the only way to describe it.  It looked like black caviar when you first look at it.

    Honey Colony Equalibrium Energy superfood

    Did it work?  I don’t know.  I was taking it at time when I was having a lupus flare.  My nausea was on the top level for me.  A couple days all I had was the spoon of the Energy with tea or ginger ale.  So some of the days due to my nausea it truly was the only food I had.  I didn’t have to take any Benadryl when I was having a spoon everyday.  I just realized that as I am writing this blog post.  That’s a pretty big benefit in itself.

    Will I buy it for myself?  At this point, I can’t afford it on my long term disability reduced wages.  I wish I could because I would like to try it for longer.  It’s a pretty powerful jar of goodness and you only have to take a teaspoon of it daily.  Check out Honey Colony  at http://www.honeycolony.com/  Prices for auto ship are less expensive than buying a single jar as are buying them in a three pack is less expensive.

    I hope you enjoyed my review of Honey Colony’s Equilibrium Energy Superfood.

    Journey with me … mini2z

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