New Year and Full of Hope

happy new year Curacao swim with a wild turtle

Where have I been? 

My last blog post was at the end of October.  So much has gone on since my last blog post such as my extra daughter came for a visit for a week, we got our basement finished, I had a whirlwind 48 hours with my daughters to Niagara Falls, our last Christmas as one big family all together, my son got a great job but means and so much more!  I believe my very next appointment with my Pain Care Doctor I was prescribed with the Low Dose Naltrexone (LDN).  I can no longer use any opioid medications as they will not work because of the LDN.  I’ve had an okay transition but finding that it’s helping for some of the joint pain but the deep burning in my hips and the SI joint it doesn’t work.  The strongest I can take of anything is Robaxacet which is just acetaminophen and a muscle relaxer.  Trying to find my way through this has been hard.

I was surprisingly approved for a medical cannabis prescription in just about eight days Click To Tweet

After two full months on the LDN my doctor suggested Medical Marijuana/ Cannabis.  We filled out the forms and his office submitted them.  I was surprisingly approved for a medical cannabis prescription in just about eight days later.  I received an email from Cannimed and did a lot of reading of the reviews on the three strains that they have and found that the oil that would be best for me the 1:20 Oil which has almost no THC ( 1 ) and more of the CBD ( 20 ).  It has a 4.5-star rating and it is the oil that children can take.  I ordered it right away and it was delivered just a day and a half later.  I started using the medical cannabis right away with the 05 ml liquid dose.  Oh my, the taste was absolutely horrible.  You see, you need to put the oil in your mouth, under your tongue and it absorbs into your system.  I kind of just figured out what the doctor meant by titrating the dose and I found what I was working for me.  After about four weeks using just the 1:20 CBD oil, my doctor suggested using something with more THC so I ordered the 10:10 oil and found out later that there is micro-dosing (so that you use the right amount at the lowest dose possible). So the 10:10 oils are talked about as 1:1 dosages for the micro-dosing after I found a wonderful support group on Facebook for Women in Canada:   SheCann   Have I mentioned that between the LDN and the medical cannabis are working?  My nausea had been cut down by I’d say 50 percent, the weekly trigger point injections are helping for about four days now and I’m sleeping well again thanks to the medical cannabis.  It’s not all good because I’m still fainting, heart racing and the deep bone pain in my hips and my SI joints.

We are a group of Canadian women who thought that we needed a place for us to share our experiences with medical Cannabis

What I’m working on now is figuring out how I can keep advocating for myself and for others who are warriors like me of Lupus, Fibromyalgia, Migraines, Chronic Pain, Hashimoto’s, Diabetes, along with depression and anxiety.  I’ve wanted to write but I was finding it hard to actually write what I was feeling because of so much of a whirlwind that’s been my health and our family.  I guess they call it writer’s block but I feel like I’m going to commit to writing once a week.

Family Christmas with ALL my Kidlets
Saying Goodbye Again …
Photo of me captured by Sandy

 

 

Do you like to see photos in blogs?  Do you just like reading the blog or are visuals good for you as well?  How are you feeling and dealing with your journey through you illness?

Thanks for following me on my journey to finding me again.

Journey with me … mini2z 

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Chronicles of Professional Patient

Chronicles of Professional Patient

In one of my brain fog moments, I thought that this would be a good feature to share with you what the path my journey has been taking.   I see at least one doctor a week and sometimes several in a week.  I try my best to only schedule one appointment per day as more than one really knocks me out with exhaustion and pain.  I’ve tried to write so many blog posts lately but they never seem to get finished.  I get really good ideas and get on a writing roll and then I can’t seem to finish them.  I have seventeen, yes, 17 drafts in my folder.  I was pretty shocked by that!

Therapeutic Nerve Block

Chronic Pain

I’m in week 16 of a 12-week trial of pain care trial.  I’m going to guess that I get to stay with the program.  The doctor I see is actually pretty awesome.  He’s so awesome that I want whoever is my driver to come in with me to meet him and sometimes his pretty awesome wife is working along with him.  My mom, my kidlet, my hubby and even a sister=in-law have met him and all of them talk about how personable, informative, attentive and caring he is.  What started out as a few shots in my lower back has morphed into back, neck and migraine treatments.  I’m getting Therapeutic Nerve Blocks and Trigger Point Injections in many nerves and muscles in my back, neck, hips and head.

 

Therapeutic Nerve Blocks involve local anesthetic and anti-inflammatory medication injected near a specific nerve or group of nerves to relieve pain.

A New Symptom

I’m having some sort of seizure and syncope episodes.  Syncope is the medical word for fainting.  Seizures explain what’s happening at times when I faint but at other times I just seem to be shaking.  During these episodes and after, I have lost some hearing, some memory loss and injured myself.  I’ve had all kinds of tests to my heart with a heart specialist and I’m waiting on more tests to be scheduled.  Since we don’t know what it is, I’m being safe and not going downstairs if no one is home and I won’t shower if there isn’t someone home either.

 

Low Dose Naltrexone or LDN

My Pain Care doctor brought up Low Dose Naltrexone (LDN) with me this past week and asked me to research it in relation to me.  On WebMD, there is a definition of Naltrexone is the drug that is commonly prescribed in the 50mg doses for narcotic drug addiction.  There are not any definitions for the Low Dose Naltrexone.

One of the big things is you need to be off of any narcotics for two weeks before starting with LDN.  This is a big concern because my migraine medication has a narcotic in it.  So the pain in my body that’s not being alleviated by the Therapeutic Nerve Block would be helped by LDN. The thyroid medication I take for my Hashimoto’scould need to be monitored and reduced as well.  I have done a lot of reading, in thanks to Donna at xxx for all the articles she’s shared.  What I’ve learned is:

Pros:  helps my pain, reduces my thyroid medications, improved sleep

Cons:  No medication for migraines, detoxify from current pain medications

Will I try it?  Yes. Why? Well, that’s easy, I want to be me again!  I miss me and who I was!

 

I miss me and who I was! Click To Tweet

 

My Wellness Journey

I became a doterra wellness consultant.  The simple reason was the discounts on the oils that I was going to get for my own personal use. If I can help anyone else while I’m on my journey, then that’s a bonus.  I’m learning so much about the oils and their uses and really could kick myself that I didn’t try this before.  I’m learning as I go and I have a great team that I can ask questions to as well.

I’m going to do a monthly blog Chronicle of a Professional Patient at the beginning of the month.   I’m back to setting goals for myself and pulling myself up to continue to heal.   I hope you’ll continue on this Journey With Me!

mini2z

 

 

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Botox for Migraines  – Yes, 24 needles 


Botox for Migraines!  Yes, 24 Needles!

 

Let’s go back in time a bit and I will give you a bit of history on my Migraines.

When I was 24 or so, my then fiancée and I were horsing around and we slipped on the hardwood floor.  I went backwards and hit my head on the dining room table.  OUCH!  It hurt and I had an immediate headache, swelling and bruising.  Almost a month later I got my first migraine and it started where I hit my head.  I was in bed for almost three days and it was brutal because I had no clue what was going on.  I suffered through the next which was only a couple of weeks after that.  The next one landed me in the ER because the pain, nausea, vomiting, dizziness and desperate need to be in the dark was too much.  The ride to the hospital and waiting in the ER was torture but that’s when I was told it was a migraine.  They gave me a shot for pain and nausea along with two IV bags of fluids as I’d gotten dehydrated.  I was referred to a neurosurgeon who I saw in the hospital about three weeks later.  He confirmed that I had migraines but no it could not have happened to me by hitting my head.  I disagree with that but okay.  I had a diagnosis.  I found out that this is what my poppa had suffered from all his life.  I just always knew to be quiet if he was in his room with the blinds and doors closed.

The diagnosis and journey with medication and trying to get the migraines under control before they start was long.  I didn’t get migraines while pregnant with either of my kidlets which was a godsend.  Migraines would come on without much warning that I could tell at the time.  Now, I get an aura (didn’t understand it back then) that I’ve always had prior to migraines.  We had tried Imitrex but it landed me in the ER with chest pains.  Fiorinal C1/4 would become the migraine medication that worked for me along with Gravol, which is an antiemetic.  Migraines have me in my room with room blackout blinds closed tight. ear plugs in with an ice pack on the back of my neck, antinausea medication, a flat ginger ale and pain medication.  Sleep and time are really the only things that work for me.  Over the years, I’ve done all the eliminations to try to find the triggers and the only one that I can find is chocolate.  I can have a couple of pieces, a chocolate bar or a piece of cake but if I have more I’ll pay for it later.  My other trigger is the weather.  It’s any change in the barometric pressure; rain – yes, snow – yes you name it, I get a migraine.

That neurologist all those years ago was the only one I ever saw.  Fast forward to 2014 when my health took an even further nosedive when I started collecting specialists.  I was referred to a pain specialist and neurologist in 2015.  On December 19th I received a phone call reminding me of my Thursday appointment in just a couple of days.  I was pretty shocked because I’ve been meticulous about organising my appointments.  I confirmed it and put it on my schedule.  I was really impressed with the doctor from the get go.  Nice low lighting so as to not trigger migraines, comfy chairs (really important to a person with chronic pain) and short wait.  I was in the appointment for almost an hour and left with a prescription I had to try before my insurance would cover the Botox, a referral for an MRI and prescription for the Botox and a plan to work on getting my migraines under control.

My follow-up appointment went well.  Just a few days later, I received a letter from my prescription insurer that they would cover the Botox and the guidelines.  I called the doctor’s office and yes for a cancellation got an appointment early the next week.  I had to bring $150 cash as OHIP doesn’t pay for the administering of the serum but it’s better than $1000.

The big day came, my mom drove me.  I went to the pharmacy in the medical plaza because the doctor likes the serum to have just thawed.  I guess that’s the best way to use it and the doctor’s preference.  Again, waiting is only minutes.  Then he tells me about the 24 shots and the initial map that he uses on all patients the first time.  The second and subsequent visits would allow for the customization of the injection points.

Then he tells me about the 24 shots Click To Tweet

Side effects were very minimal for me.  I had some pain in my left ear area and will inform the doctor on my next visit.  As for the not being able to move my eyebrows properly, I haven’t seen this issue or for me, it’s a non-issue.

My next appointment is in June and so far my migraines are still present and have not reduced in numbers.  Spring with the weather changes is always a horrible time for my migraines.

Do you get migraines?  Are they affected by weather?  Have you tried Botox?  I hope you enjoyed reading my migraine journey and will share your migraine journey with me!

Journey with me … mini2z

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