In 1994 when I was pregnant with my son I received my first autoimmune diagnosis for Hashimoto’s Thyroiditis. I saw an endocrinologist when I was pregnant and then he dismissed me after. I’ve only been under my family doctor’s care for most of the time.
Type 1.5 Diabetes or Latent Autoimmune Diabetes in Adults or LADA
In April of 2012, I received a diagnosis of Latent Autoimmune Diabetes in Adults or LADA as a short form. I was first diagnosed as a type 2 but when I saw my new endo I was then told I was a LADA or a type 1.5 or a progressing type one. I had never heard of it but it’s the adult version of diabetes it just takes everyone a different amount of time for the body to kill the pancreas. I am currently on three different pills to control diabetes and have been begging for insulin for about a year now.
In November of 2014, I was finally diagnosed with Lupus SLE. It had been three years of feeling like I have the flu. No one test or person is the same with Lupus and mine seems to not like my liver. I get only a faint butterfly rash on my face and it comes and goes. I’ve had times where I’ve slept for two days straight and taking a shower means I have to nap afterwards sometimes. I’ve been delayed being put on Plaquenil because of the liver issue that isn’t an issue.
This is my Rheumatologist’s catch-all for my other symptoms.
I have chronic pain in my whole body. I have it really bad in my joints from lupus and fibromyalgia. I’m currently undergoing some nerve therapy shots to my back, hips and SI joints.
My migraines have plagued me since I was in my early 20’s. I got my first one about a month after a bump to the back of my head. To this day my migraines still occur in that spot. I’ve written a blog about the story of my migraines. My current treatment is receiving Botox. You can view that here.
The years in between my Hashimotos diagnosis and the next were a haze for me. Â I was a wife, a mom, I worked full time and I caught every bug all the time. Â The years were busy but I wasÂ always sick. Â I thought it was picking up stuff because my job entailed me being in the public and the kids brought home all kinds of bugs over the years. Â I don’t know when it was exactly but I remember feeling like I had the flu forever and continual migraines, lets NOT forget migraines. Â My thyroid levels were checked frequently and adjustments made but I always was feeling like crap. Â I had my appendix out and thought that some of the feeling like crap was when that was starting to go. Â So many things all seemed to happen at once.
So this forever flu brought constant low grade fevers, nausea and frequent diarrhea. Â If I had a fever, nausea or diarrhea I can’t work. Â Some people may be able to but I can’t so I was the one from work who was “always sick” and was a let down to coworkers.
Diabetes was my next diagnosis. Â In the beginning of 2012 the nausea, headaches and flu like symptoms just seemed to be endless. Â I remember my husband testing my sugar one morning before I’d even had my morning tea. Â Well my fasting sugar was 9.2 and that was high. Â Called my doctor and got to see him within a couple days, more tests and metformin was started and yeah I got to add a new doctor to my team. Â I was referred to an endocrinologist. Â My sugars were all over the place, I was sick, I was losing weight and was a my lowest weight since before kids.
Latent autoimmune diabetes in adults (LADA) is a slow progressing form of autoimmune diabetes. Like type 1 diabetes, LADA occurs because your pancreas stops producing adequate insulin, most likely from some “insult” that slowly damages the insulin-producing cells in the pancreas. But unlike type 1 diabetes, with LADA, you often won’t need insulin for several months up to years after you’ve been diagnosed.
The Endocrinologist and his nurse said I wasn’t a type 2 diabetic and it was the first time I’d heard the words LADA and type 1.5 and progressing Type 1. Â I found out that I was a slowly progressing type one diabetic who could be managed on pills, diet changes for a few months to almost two decades. Â The average is six years I was told. Â A new medication was added, metformin was increased and I tried to cope. Â I was off work for a few weeks on short term disability, we had recently gotten a puppy after our house being too quiet after our previous Labrador had left for the Rainbow Bridge. Â I was feeling down but depressed wasn’t a word I could say. Â My hubby begged me to go with him and Keely to her vet appointment. Â It was sunny and he thought a drive would make me feel better. Â He was trying to make me happy. Â The day ended on a not so happy note and I went back to work way to early and hadn’t really digested that I was a diabetic.
One thing I did do was go gluten free because I thought that it would help get me better. Â I thought if I just ate better I’d get better. Â Yeah, that didn’t work. Â I was still sick all the time. Â My sugars were regular and any spikes would be from something I ate that I shouldn’t have. Â I’m now on three pills with an A1c that is perfect in the eyes of my endocrinologist. Â He’s given me another six month of just the pills and said that the my current issues which are the Lupus and Fibro are the “bastards”. Â His words not mine.
Thanks for reading part two of my journey. Â Part one is here if you missed it. Â Part three is “the Bastards”.
It’s Thursday and I usually do Thursday thoughts but I don’t know if my brain can function to put enough thoughts to make sense. Today my be just my ramblings…
I’m so thankful that I have an amazing family who has been here for me every step of the way with this journey of finding my new normal of life with a Chronic Illness.
If you’re just reading this for the first time I had been diagnosed with Hashimoto’s Thyroid disease back in 1994 when I was pregnant with my son. The specialist gave my a prescription and said I’d start to feel better in a few weeks BUT I do remember him saying my antibodies were almost 600000, yes SIX HUNDRED THOUSAND! That’s not normal even with Hashimoto’s I would come to learn. I had no idea that other than the fatigue and hair falling out was there any more issues I would need to be worried about. It wasn’t until years and years later that I would learn that my thyroid wasn’t controlled with that one little pill.
I learned a few years ago that I wasn’t being controlled properly with Synthroid and I was having more and more symptoms. One of those symptoms was depression and it was just the blues here and there and I fought through it without knowing what it really was or admitting it to myself.
After my son, we lost a baby but not in the usually way of a miscarriage. I had to go and have a missed miscarriage. What is that you ask? Well, I was there for my 12-week ultrasound at 13 weeks and all excited to see my baby on the screen. The tech turned the screen quickly and I knew something was wrong. We were quickly sent to my doctor’s who had the task of explaining that our baby stopped growing somewhere between six and seven weeks but my body had not done its job and was holding onto a not viable pregnancy. I went to the hospital the next day and was no longer pregnant, I didn’t really grieve either and just hugged my toddler and ploughed on. You’ll get over it, they said. Well, it’s 19 years later and it still makes me cry.
We got the okay to try again and we got pregnant right away. At 7 weeks, it was all so new I woke up at 5 am and knew I’d had a miscarriage. We went to the doctors, the to the hospital where I had an ultrasound and had been informed that I would get to go home or be admitted. Well, they sent me back to my doctor’s with a sealed envelope. The doctor came into the room and was kind of shocked as to why we were there. My doctor read the letter and said, well you’re still pregnant! My husband asked how? The doctor calmly said, you lost a twin but the baby is still in jeopardy and you will need bed rest and ultrasounds every two weeks followed up at the doctors. We were in shock and it wasn’t until last night when my healthy beautiful daughter asked me if we grieved did I really think about it and my truthful answer to her was no we didn’t. For months we thought about it but we wanted to keep her safe and sound until she was ready to be born.
Right now, that beautiful baby is an 18-year-old woman and I love her to the moon and back but every time I see twins, I think of my angels in heaven.
I just found out that my youngest is considered a Rainbow baby. A “rainbow baby” is a baby that is born following a miscarriage or stillbirth.
In the real world, a beautiful and bright rainbow follows a storm and gives hope of things getting better. The rainbow is more appreciated having just experienced the storm in comparison.
The storm (pregnancy loss) has already happened and nothing can change that experience. Storm-clouds might still be overhead as the family continue to cope with the loss, but something colourful and bright has emerged from the darkness and misery.
It wasn’t until four years ago that I started fighting for my right to try a different medication with my Endocrinologist. Doctors don’t like having a patient bring papers in with research but I did. He allowed me to “try” Thyroid by Erfaat 90 mgs and it was changed to the 125 mgs six months later and that has been my dose for the past few years. My T3, T4, Free T3, Free T4 are all within range and antibodies still run amok but nothing like 600K. I knew something was wrong with me when I still felt like crap which lead to more tests and my life today with not only Hashimoto’s but LADA, Lupus and Fibromyalgia.
My Story Isn’t Over Yet;
Dedicated to My Angels on Earth, Travis and Sierra and my angels in heaven.