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Â It’s been a really rough week on the “invisible” illness front for me. Â The new medication, the increase in the another medication is kicking my butt. Â I’ve been on Plaquinel for one week now – I think? Â The increased prednisone has helped the rash from breaking out more but I’m still sensitive to everything that touches my skin. Â My family has gotten used to seeing me in inside out t-shirt and sleep pants. Â The seams are driving me nuts.Â I’ve been sleeping so much but it’s not restful sleep and every part of my body hurts. Â
I scheduled the dogs grooming around today’s doctor’s appointment. Â So we dropped the pupalups off at Petsmart for their baths, nail trims and Ranger’s beard trim. Â The girl who took them was someone I hadn’t seen before and I just get the feeling she was having a bad day or really didn’t want to deal with my pupalups. Â Keely is a Lab who hates water and cries the whole way thereÂ andÂ while she’s there. Â Ranger love water, baths and would be great in the car without Keely and her anxiety cries. Â I always look at their report cards and see “they were so good today” when I know that Keely has barked from the time she was there until us picking her up. Â So we had over an hour to kill before the my doctor’s and I suggested going for breakfast even though I’m feeling so nauseous. Â A good quick breakfast and I went to pay. Â Our waitress asked if I was okay. Â I said I was just tired and she said I looked hungover. Â I explained I had lupus and she said, “but you don’t look sick.” Â Yes I know I don’t look sick and really hate that I look hung over. Â She also said something about but you’re so young. Â I explained that anyone could get it and you really don’t see what it does to people. Â Oh the only good part is she thought I was only 27 years old. Â I wearÂ moisturizerÂ with SPF but that’s about all that’s been on my face except for our son’s wedding.Â Â So I guess I’m a young looking “not sick” person…
I am seriously sick of people looking at me and not knowing I’m fighting myself daily.
The pupalups are home and fresh smelling in FALL bandannas…it’s still SUMMER. Â Aren’t they just so cute?
So I’m gonna sleep…maybe until tomorrow… until then…
Journey with me … mini2z