There is a great community of “spoonies” out there. Â The Spoon Theory written by Christine Miserandino on But You Don’t Look Sick. Â It’s an amazing article that explains you only get so many spoons a day and when you’ve used them up you’re done or out of juice for the day.
I have days where a shower is a major achievement. Â I never realized that something I used to love so much could exhaust the crap out of me now.
My house looks like it’s a complete scene of chaos. Â There is so much I want to do but I get started and run out of spoons for the day.
I’m plagued with non-restorative sleep and I have a witching hour or two between 2:30 am and 4:30 am where I routinely wake up and can’t get to sleep. Â I’m exhausted and tired but sleep doesn’t come.
My autoimmune journey started 20 years ago with the diagnosis of Hashimoto’s Thyroiditis. Â It’s where my body for some reason decided to think my thyroid was an invader. Â My body will eventually kill my thyroid completely.
Next came Diabetes. Â That visit was the first time I had heard that I was a LADA or a type 1.5 diabetic. A LADA doesn’t have the same issues as type 2 diabetic. Â My endocrinologist said he considers me a progressing type 1 diabetic. Â Meaning my body is attacking my pancreas and I will need insulin to survive. Â So far diet change and three medications are keeping me Â alive.
Recently after feeling like I’ve had the flu for year along with some crazy blood tests, a butterfly rash on my face that comes and goes, sores in my mouth and nose and swollen joints. Â So that specialist finally diagnosed me with Lupus and Fibromyalgia. Â He also sent me to another specialist who did a lot tests to check on my liver. Â The term fatty liver disease and then Autoimmune Liver disease were thrown at me, Â Follow up tests and appointment says no I don’t have any liver issues.
Depression is a symptom that comes with ALL the autoimmune diseases I have. Â And I’m working on it. Â I’ve learned three types of meditation. Â I need to look into more places where I can work on the meditation. Â I have a bunch of other issues that I’m not ready to talk about to the world yet. Â I thought this might give you an idea of why some days I have a blog and then you don’t hear from me for a week.
So send me some spoons, a housekeeper, prayers or positive thoughts.
Journey with mini