Feeling Some Hope
I wonder when my life became a revolving door of doctor’s appointments, nausea, fatigue, chronic pain, migraines, and the list goes on. I spend my time managing my life around my illnesses. I have a no more than one doctor appointment in one day due to the crappy chairs in the waiting rooms that cause more pain, doctors falling behind because it always happens. I have a few doctors that I get in right around my appointment time.
I’ve had to have a few doubled up appointments because my Pain Care doctor wants to have me try Low-dose naltrexone or LDN. I’m a good candidate but it entails having all my doctors aware and on board so that we can work quickly if any complications arise. What is LDN? Well, the short answer is it’s a smaller dose from .05 to 4.5 mg compared to the 50 mg dosages that are given to persons going through opioid withdrawal. The LDN is what’s called off-label because they’re still doing studies on it. Yes, I feel like I’m part of a study, I’m not but the process has been hard fought.
What is low-dose naltrexone and why is it important?
Low-dose naltrexone holds great promise for the millions of people worldwide with autoimmune diseases or central nervous system disorders or who face a deadly cancer.
My conditions of Lupus, Depression, Hashimoto’s, Fibromyalgia, are just a few of the conditions that LDN can help. I’ve also read that it can help with migraines. I’ve lost three years of my life so far to the storm that my body has gone through. I’m currently seeing a General Practioner monthly, my Pain Care Doctor (anesthesiologist) weekly for therapeutic nerve injections, Psychologist and Psychiatrist both vary between every 4-6 weeks (it was at every two weeks), my Rheumatologist, I see quarterly now but I can call if I need to see her sooner and then last but not least is my Endocrinologist who I see twice a year but I went in to see him three months early so that we could get this LDN started. I also supplement my doctors with massage, chiropractic and essential oils.
My Endocrinologist has applied for a FreeStyle Libre Glucose Monitoring system. The fears are that I’ll end up in more hypoglycemic episodes in addition to the high sugars. I think it’s a product that I’ll love. So please cross your fingers that I get approved for this device.
In between all these doctors appointments, I try to keep up with something in the house be it dishes, folding laundry, sweeping up dog hair on top of my chronic pain, nausea and almost always present migraine. My daughter has gotten me to the actual cinema a couple times and the new lazyboy recliners are any spoonies friend for a three-hour movie.
I’ve been more “lupusy” of late, I basically fell asleep on Thanksgiving at the table and then slept for two more days. For me, the lupusy feeling is more achy joints, constant headache, more nausea (is that possible?), itchy and low-grade fevers, basically the feeling like having the flu but it doesn’t ever go away.
This week on deck, my shots aren’t until Thursday and I have a 2nd Dr appointment that day. I have only one other this week so I’m feeling like it’s a slow week. I have a pile of lab work to get done but the majority of the vampires are on strike and the couple times I’ve gone to the other labs, they closed really early because well everyone needs bloodwork.
I feel like this blog post was so technical but for me, it’s exciting that all my doctors are on the same page, I may be on the LDN soon. Now back to the regularly scheduled chaos of getting our house back to pre-flood, my daughter and her friend painted the first coat in the family room and it looks good.
Journey with me … mini2z