Wanderlusting With Lupus


Part One:
I have so many things I want to blog about but since I’m a chronic person with severe Wanderlust I chose today’s topic.

A few weeks ago, my daughters plans to go to Mexico with friends fell through.  I felt bad because I had been to Cuba when I was her age but I went with a group and had a couple aquanytances on that trip.  I’ve been in my house for over a year trying to find my new normal battling with Lupus, Fibromyalgia, diabetes and Hashimoto’s, depression, anxiety and migraines.   My husband said she’d get over it but Se has my wanderlust bug and I knew I needed some inspiration and she brought it to me.

At five weeks out we were looking at the flyer sales I get from a few travel sites I subscribe to.  I found a Greek Isle cruise for insanely cheap but flights were triple. I then found Curaçao and we fell in love with the beautiful buildings, it’s Unesco World Heritage site and the sea, OMG the sea looked so inviting.  My daughter had her heart set on one hotel because of the beauty but I knew that my body couldn’t handle trying to find meals everyday, snacks, drinks, grocery shopping and cooking.  So I found the only all inclusive on the island and read review after review so I had an idea what we would be getting.

I knew it would be a secure place with unlimited food and drinks and a 24 hour cafe for treats, coffee and fresh fruit. I knew that we wouldn’t have to leave the resort if we didn’t want to.  So we chose Sunscape Spa and Resort Curaçao for all those reasons and more.  I then upgraded us to their SunClub that gave us free room service, a private pool, private beach area and more.

My husband was so worried about me going away when I’ve been so sick.  I took so many precautions including getting typhoid shots, taking two does of  dukerol (horrible nasty drink to prevent travellers tummy) and tried to not over pack.  I have some lists of items that were must haves for me and some that why did I pack this?  So I will have two more blogs coming or more on Curaçao.
We arrived early and I should have read more about the global entry, like a fast pass for Curaçao because that line was short.  I was an idiot and my carry on was a carry on not a wheeled luggage in any way, I was hot, exhausted and tired waiting in the customs line.  Lots of people spoke Dutch to us just automatically because that is one of the languages of Curaçao.  


Getting out of the airport we found our transfer quickly and sat on the hot bus until it was full enough to head to our resort.  On arrival, we were given a drink and an ice cold washcloth.  We were then ushered into a wonderful airconditioned room for the sun club members.  Did I say it was airconditioned?  We got our room and I was too tired to argue about the wifi at that point and said we’d figure it out after food and sleep.  We found our room and I listened to fellow trip advisors that you want a main floor room which we received.  The Sun club was at the far end of far of the resort but it was quiet (or so we thought – part three maybe?)


The room was beautiful, our view was amazing and it looked like we were in heaven.  We got changed into bathing suits and through a top over with jean shorts and decided on the steakhouse.  We got a seat right away and both ordered the filet minion. Dinner of great food, warm breezes and sunset on the water, yes we were in heaven.  We walked back to our room and both fell asleep before 9pm.  Curaçao is on the same timeline as us so it was really early for a bedtime but travel will do that to a normal person but to a Chronically Ill person well it just kicks your ass.  I slept for over 11 hours according to my Fitbit.

We planned, we made it there and kept the rest simple and I will share our excursions off the resort in Part two of Wanderulusting with Lupus.

Journey with me … mini2z

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The Doctor Journey


I really don’t know what to call medical updates.  I went to the new doctor on Monday morning really really early.  I’m not a morning person.  But I did get to see a fellow lupie who I’ve only talked to on Facebook and the phone.

I have a Family Doctor, a Psychologist, a Rheumatologist, a Psychiatrist, a Gastroenterologist and an Endocrinologist.  I have got my family doctor to get my blood tests that are every three months with the other tests the rest of them want so I don’t have to go every month for blood draws.  

So I took a photo of all my medications so I wouldn’t have to lug a suitcase in with me. Well I guess I should have looked more closely at the photo because I couldn’t read everything on all the labels.  There has to be a better way to share the information with your doctors.  They all need the same information so a database system that they all could access with your medications, your lab work, other test results.  I know this makes sense so it will never happen.  So I get to keep carrying my lab results and any test results that I have had because to tell them all oh I just had that test, oh I had an ultrasound but didn’t remember if it was just my stomach and gall bladder or the whole area.

Well I get to go for a stomach scope.  The new Gastroenterologist said he’s going to test my stomach for Celiac disease since I have a few autoimmune diseases already.  The good thing is I’m first up because of my latex allergy bad thing it’s early in the morning.  In my 40 plus years I can say I’ve never had a scope.  I have had to swallow the chalk for the barium test but that was a long time ago. I just want to stop feeling nauseous for 24 hours a day as I wasn’t even this nauseous when I was pregnant with the kidlets.

It’s nice because today is a no doctor day which mean I can stay in my comfy clothes. Lounge pants and a tank top.  Last night I even put the eye gels to try and reduce some of the bags under my eyes from the crappy sleep.  I’m thinking they did NOTHING for me.  I’m using a new serum for around my eyes and a new face product for moisture that I’ll be doing two blogs on the weekend about.  The eye serum smell really bad but the face stuff is rose scent and I love it.

March is Autoimmune Awareness

Don’t forget it’s Autoimmune Awareness Month still and share your information!

If you’re a blogger and you have a Chronic Illness that you blog about please join in with the Chronic Bloggers here.


So how do you manage your doctor appointments?  Any advise on the scope?  Being put out so that makes me happy!

Journey with me … mini2z



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Depression Kills – Please Talk to Someone

mug from Project Semicolon
Copy-write of Project Semi Colon 

Stay a spoken word by our founder, Amy Bleuel.

“Be the light in the darkness. Let the world know that there is still hope. Don’t hold back anymore. You are needed. You are the change. You can make a difference. Hear me now. There is still time. There is a light that still shines within you. Stand strong my love. You are here for a purpose.” – See more at:



Depression Kills – Please Talk to Someone


I’ve included some links, I really can’t say much more than find someone to talk to. Suicide my take your pain away permanently but your friends and family are left with even more pain and questions. Every underlined statement is a link to help.

Please talk to someone, anyone, don’t let your story be over;

Always Keep Fighting 

List of Suicide Prevention / Crisis lines from all over the world

Please talk to someone!

Journey with me … mini2z



*Project Semicolon

*Always Keep Fighting

*Wiki Crisis hotline lists

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