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    Saying Goodbye to 2016 and Welcoming What Lays Ahead

    Goodbye to 2016 and Welcome to the New Year

    happy new year Curacao swim with a wild turtle

    It’s a new year but I’m far from being well.  I will look back and see some positives that 2016 brought me.

    A new Rheumatologist who is great.  She treats me like a human being and not someone just to see how does my new office look or why are you here.  That still makes me shake my head.  I’ve learned to space my appointments out as if I have more than one a day and more than three a week it gets to be way too much for me and my drivers.  I finally got a long awaited referral to a neurologist just days before Christmas.  I had a call early on the Monday morning and thought it was for another appointment on the same day, nope it was an appointment that I had NO clue about.  I arrived early and thankfully as the paperwork was more extensive than ever.  I was in with the neurologist for almost an hour.  He did say that the botox would help but because of my insurance rules I had to try one more medication for two months first.  So I’m on that medication until March with a return visit booked.  I’ve also been put into the waiting game list for an MRI of my head.  The Dr. did say that I’d need the botox in several spots including the spot where all my migraines start, stay, basically live, also in my neck and in my jaw on the left side.  The jaw part was surprising.  I have some jaw cracking and I know I grind my teeth but getting shots there surprised me.


    The excellent news is the head MRI is very early March at 7pm but that is so quick for an MRI where I live! Click To Tweet

    Some good things in 2016 were my daughter getting into the Bachelor’s of Science, Nursing which is her dream job. Getting the okay and you must get away from the doctors.  Getting five (I think I’m at five?) doctors to agree that a trip would help with relaxation and my severe anxiety. Then getting the okay to spend a couple weeks camping after a couple months of both the hubby and me homebound for over two months, me with my illnesses and him with his broken leg repairs.  The couple weeks in Sauble was almost perfect.

    My mom moved out of our house and in with her 92 years young mother.  It was time and gram is happy to have her there with her.

    I’m still sick and take it day by day and hubby’s leg still isn’t right.  We worry that he’ll be needing to get the plate and screws out as we think it’s an allergy to the metal.

    We need to get our children who live in the house to do more around the house.  Hubby is working, I’m not able to do much with having more bad days than good so they need to step up.  Yes, school and work come first BUT family and their home comes before friends and fun and way too much sleeping.

    My Favourite Photos of 2016

    I don’t make “resolutions” as I will always break them.  I will list some things I’m going to work on doing better, though:

    • budgeting – meal planning, cut back on spending (subscription boxes)
    • blog on a sort of set schedule for me – sponsored blogs yeah they get done but personal ones go on the back burner
    • walking and yoga – again it’s not something that I can schedule but I’d like to have someone walk with me with the pupalups and get to yoga once a week
    • keep getting better rest and sleep – it has improved but the painsomnia can’t be helped
    • not feel guilty for what I can’t do – that’s a hard one but working on it every day
    • try to get my nails in order, take medications on time (more on that in a couple months)
    • get to the dentist to get the work done that needs doing

    I hope you’ll continue to be with me on my journey with lupus SLE, migraines, chronic pain, fibromyalgia, diabetes type 1.5, painsomnia, depression, anxiety, gastritis and whatever else gets thrown my way.  

    I’m going to #alwayskeepfighting because #mystoryisntoveryet ; Click To Tweet

    So keep fighting with me because we have so many stories to tell!

    Journey with me … mini2z

    mini2z journey with me logo

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    Monday Musings


    Today is Monday, December 14th, 2015 and I’m musing about

    • I’d like to thank the new followers from the Blogging U group
    • I joined another Blogging U group, it’s a commenting bootcamp because I completely suck at commenting on other’s blogs.  I really want to improve.
    • I’ve had a bad week I was in pain before the shots in my hips, then after the usual bruising and now right hips still hurts so I have no idea what’s going on.  Nausea has gone to an all time high and this rainy dismal damp December weather isn’t helping.
    • I don’t think either of my kidlets read my blog about my vents about them but I didn’t scream at them…much
    • My son picked up my newly repainted table in distressed red done by the amazing Painted Twice Designs
    • Yesterday, I posted a short blog with a short video of my crazy pupalup playing with a can of soup, yes he has LOTS of real toys and why my daughter gave him the can is another mystery but it was quite funny.
    • I received my secret Santa gift this past week and she hit it out of the park and I loved everything, the book I needed, socks to keep me cozy, a new tea and a Sheepie Mug (I had one but it broke) Thank you Stacy <3
    • my daughter has her finals this week and to say there is a bit of stress around the house is an understatement
    • Hopefully with my hubby home we can get our tree up this week
    • Christmas shopping is mostly done and thankful for that online shopping thing that’s become so popular
    • I need to get Christmas cards completed
    • I need to get back on track blogging starting today with my Monday Musings
    • My #AKF4 or #AlwaysKeepFighting IV shirt is on it’s way to me! #AKF is the Always Keep Fighting by Jarad Padalecki who suffers and is fighting depression.  It’s my second t-shirt from the campaign but it’s true to my heart because I’m fighting everyday
    my table

    My new distressed RED table painted by Painted Twice Designs

    So what are you musing about on this Monday?

    Journey with me … mini2z



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    No Toys 

    So Ranger the crazy pupalup decided that he’d play with a full can of Campbell’s Tomato soup. 

    I swear they have toys but he seamed to like the can. 

    Journey with me … mini2z


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