Lupus Sucks 

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I have to keep saying this to myself but some days I want to give up, give in, anything to feel normal again. Constant pain, constant nausea, fatigue, not sleeping, headaches, sadness and so much more day after day really wears on you.

When you store up, rest up to be able to face the next day and then end up feeling worse you wonder why me?  I’m a fighter but some days I have nothing left to fight with.

Every year I go to a hockey game with my son.  That was yesterday.  Today I’m so feeling, the too long of a walk, too many stairs, the cold, anxiety of such a large place in public and over stimulation.  The noise and flash overhead (we think it was a photographer for the game) had me wanting to leave after the warm ups.  I had to go to the bathroom but didn’t want to go alone and my son can’t go in a ladies room with me twenty years old so I waited until we were leaving and again more stairs.  I see my family doctor tomorrow so I’m going to ask for x-rays of my hips because they’re in so much pain today that just resting they’re throbbing.

I do have to say that both my kidlets have had colds the past week or so and I haven’t gotten that.  (touching wood) I will be getting cortisone shots next week in both hips at an increased dose so I know that will provide some relief after a couple days but the shots don’t seem to last very long. 

So I’m going to Always Keep Fighting.

Journey with me … mini2z

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Thankful

 So I did pretty good yesterday eating well.  I need to add more greens and that will get done today! I was short water but I think I make up for it with my through the night drinking.

My outfit for going to the doctor’s office – kidlets each have one of mine and hubby’s vehicles.  I’m thankful that it was a beautiful day for November and the scarf was gone before we got home.  I get more nauseous on the motorcycle so I’m trying to get my stomach to settle.  Another medication adjustment and back next month.  If this adjustment doesn’t work we’ll be trying a new one.  

Yesterday I made my smoothie with mixed berries, vanilla Shakeology, coconut milk and ice.  It was so yummy that I had it again today.  I got my walk in already and I think my body is rebelling because I need a nap which I’m going to take. Like my crazy pupalup Ranger who is sleeping on both beds in our room and making Keely made in the process.

 So being housebound again, I’ll be taking a nap.  I did buy myself some flowers on the way home from the doctors. What are you thankful for today?

Journey with me … mini2z

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Thursday Thoughts

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Today I’m joining Jennifer at Ramblings of a Suburban Mom for Thursday Thoughts..

  • Like Jennifer’s little guy, my little guy (not really little anymore at 6’3″) has been sick the past few days. The first day he went to the Urgent Care and got the doctor we call Dr. D***.  I could probably do a whole blog series on the man who is a pompous a** (I know I don’t usually swear but the man is a true idiot)  Told my son, go home take a couple gravol.  He went to the family doctor who actually listened to his lungs and is now on antibiotics.  After 20 years I know when the boyo needs them because he was five months old when we first ran into Dr. D*** in the ER. (rant over)
  • My girlie is an alien and that’s all 
  • The Wanderlust photo is a photo I took last year at Sauble Beach, Ontario.  It was a super windy day and I was playing with filters and this was the result.  I’ve pinned it to Pinterest and hope it gets shared a lot!
  • I ordered my Christmas present from my husband today.  Yep, I order, he pays and I get what I want.  After 22 years together, it works.  I would love some surprises now and then like flowers because I just love flowers (hint honey)
  • Lupus has been rearing its ugly head and I’ve been sleeping during the day all week and throughout the night.
  • We actually still have leftover turkey!  I think my husband said it was a 26 lb turkey.  
  • I’m completely loving my new cabinet in my kitchen that rolls, extra storage and only has a teapot and fruit bowl on it.
  • I just received my Elizabeth and Clarke the Unstainable Shirts.  I totally forgot that I was having them delivered to Canada and not my mailbox in the US.  I have two of the Parker blouses and all three Liz Lemon’s in the three colours.
  • I’ve been in a writing funk, maybe because I want to go away somewhere, anywhere but being sick kind of sucks the life out of that #lupussucks
  • My pupalups have been going nuts over the baby squirrels that come to the living room window to peek in at them.
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    New vase from Etsy – flowers I bought myself

    Sorry if I’ve not been writing much but just feeling a lot blah.

Journey with me … mini2z

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