Saying Goodbye to 2016 and Welcoming What Lays Ahead

Goodbye to 2016 and Welcome to the New Year

happy new year Curacao swim with a wild turtle

It’s a new year but I’m far from being well.  I will look back and see some positives that 2016 brought me.

A new Rheumatologist who is great.  She treats me like a human being and not someone just to see how does my new office look or why are you here.  That still makes me shake my head.  I’ve learned to space my appointments out as if I have more than one a day and more than three a week it gets to be way too much for me and my drivers.  I finally got a long awaited referral to a neurologist just days before Christmas.  I had a call early on the Monday morning and thought it was for another appointment on the same day, nope it was an appointment that I had NO clue about.  I arrived early and thankfully as the paperwork was more extensive than ever.  I was in with the neurologist for almost an hour.  He did say that the botox would help but because of my insurance rules I had to try one more medication for two months first.  So I’m on that medication until March with a return visit booked.  I’ve also been put into the waiting game list for an MRI of my head.  The Dr. did say that I’d need the botox in several spots including the spot where all my migraines start, stay, basically live, also in my neck and in my jaw on the left side.  The jaw part was surprising.  I have some jaw cracking and I know I grind my teeth but getting shots there surprised me.

 

The excellent news is the head MRI is very early March at 7pm but that is so quick for an MRI where I live! Click To Tweet

Some good things in 2016 were my daughter getting into the Bachelor’s of Science, Nursing which is her dream job. Getting the okay and you must get away from the doctors.  Getting five (I think I’m at five?) doctors to agree that a trip would help with relaxation and my severe anxiety. Then getting the okay to spend a couple weeks camping after a couple months of both the hubby and me homebound for over two months, me with my illnesses and him with his broken leg repairs.  The couple weeks in Sauble was almost perfect.

My mom moved out of our house and in with her 92 years young mother.  It was time and gram is happy to have her there with her.

I’m still sick and take it day by day and hubby’s leg still isn’t right.  We worry that he’ll be needing to get the plate and screws out as we think it’s an allergy to the metal.

We need to get our children who live in the house to do more around the house.  Hubby is working, I’m not able to do much with having more bad days than good so they need to step up.  Yes, school and work come first BUT family and their home comes before friends and fun and way too much sleeping.

My Favourite Photos of 2016

I don’t make “resolutions” as I will always break them.  I will list some things I’m going to work on doing better, though:

  • budgeting – meal planning, cut back on spending (subscription boxes)
  • blog on a sort of set schedule for me – sponsored blogs yeah they get done but personal ones go on the back burner
  • walking and yoga – again it’s not something that I can schedule but I’d like to have someone walk with me with the pupalups and get to yoga once a week
  • keep getting better rest and sleep – it has improved but the painsomnia can’t be helped
  • not feel guilty for what I can’t do – that’s a hard one but working on it every day
  • try to get my nails in order, take medications on time (more on that in a couple months)
  • get to the dentist to get the work done that needs doing

I hope you’ll continue to be with me on my journey with lupus SLE, migraines, chronic pain, fibromyalgia, diabetes type 1.5, painsomnia, depression, anxiety, gastritis and whatever else gets thrown my way.  

I’m going to #alwayskeepfighting because #mystoryisntoveryet ; Click To Tweet

So keep fighting with me because we have so many stories to tell!

Journey with me … mini2z

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The Other Side of the Spoon

#othersideofthespoon
HOME – together
I started. This blog post at 24 hours after my hubby had an accident with his motorcycle and broke his leg in two places. We have a great family support system in our five children and my sister in laws. Last night we had four of the five kids here brought us food, hubby some items needed like his iPad and headphones because he’s here for the long haul. I didn’t stay last night but felt completely guilty because I needed to go home, get medications since my son lost my plaquenil (it was left at home) and I went to the hospital without a shower. My oldest, the only one who didn’t make it on Saturday came and sat with me while her dad was in surgery. She felt bad because she was the only one that didn’t make it the night before. She was a trouper and brought me a tea, we got to visit with hubby in the recovery before surgery. The doctor came out after about an hour and half and and he said he’d be out of recovery in an hour. Then my boys showed up, one with food for me and the other with items I forgot because I was going to stay the night with my hubby. We were still waiting. He had surgery at 4:30 pm and at about 8:30 a nurse came out and told us that hubby was still frozen and would be in recovery for a while and only one could come in. I made my oldest go in and see her dad because she had to go to work really early and I could see how tired she was. She let us know that he was awake but until he could move his legs he had to stay. At some point my daughter in law came and we waited. After all the tea, I had to make a few trips to the restroom which was nowhere near the OR waiting room and on my last trip the transporter told me they were bringing him up to his room. I grabbed the kids and all our crap (I have an ER bag but that’s another blog) and we went up to the room. They got him settled into the room and I hadn’t realized that they were going to move him one room over to a private room (damn) and that they had moved all our stuff and the chairs I had the boys procure from hallways. The youngest came up after she was done work. I was given an an awesome lounge chair that was better that the chair from the day before. I slept for a two hour block that was completely solid and I have the Fitbit evidence to prove it.  

The other side of the spoon ( #othersideofthespoon ) is where I have been for five days so far. I’ve been the worried one with my hubby who has been my rock out of commission. After four days, three nights hubby came home. I was so tired that I didn’t hear the house, my cell phone but my son did. We went to get him and remembered all the stuff he needed to come home, a left shoe, hoodie but I forgot the cigarettes (the nicotine patch worked great in hospital) and his other clothes were there along with the crutches that we borrowed a year ago (thanks Vicki). He was still getting his bandages changed and all the discharge paperwork done. Home meant, walking boot, prescription pick up and something else but my brain isn’t remembering. Once we got home, yeah house keys were an item none of us had them. A call to my mom to bring keys because our daughter wasn’t answering her phone and she locked us out. Getting home and settled was exhausting. We had to make sure nothing was in his way of getting to the bedroom, to the bathroom and to the kitchen. First problem was our bathroom rug even though it had a rubber backing it almost made him fall. My house was a mess and I’ve been working slowly to get it so Ger could have some visitors and not be embarrassed by our house. I did have my mom vacuum because we had piles of extra dogs around as my pupalups shed a dog a day.

My hubby is reluctant to ask me to do anything because he knows I’m not well and get exhausted easily. I’m on the other side of the spoon and figuring out what I can and can’t do to help is new to me. Last night he was talking in his sleep which is something he never does so I kept waking up and asking questions like do you need medication, a light on to get up to go to the bathroom? Keely our lab likes to lay right next to the bed and she blends into our hardwood floors. He was just talking away and went the whole night without a pain pill BUT needed them as soon as he woke up.  He’s reluctant tho take any medications as he only has so many and with any pain pills he has only five days worth and his follow up isn’t for another 10 days.  

#othersideofthespoon
hospital living

Today is day six after his accident. He still needs to look at the Harley and see if we need to call the insurance company. Today, is me trying to figure what I can do but I made some decisions yesterday and got a walker / wheelchair for two months, my so picked up the dog food, paid the bill for the boot that my hubby has only worn home and cooked us dinner as there is only so much take out you can eat or afford. 

As for me and being on the other side of the spoon this week, it’s been exhausting but I love my husband and this past year of my illnesses has brought us closer together.  I know that seems weird that an illness and injury had brought us closer but it has.  He’s my best friend and I am his.  We are in this together and even though I got the diagnosis from a second Doctor that I have lupus this week, I’m more worried about my hubby and learning what it’s been like on the other side of the spoon than what’s my future at this point.  I just want him to heal and to be able to rid his motorcycle that he waited oh so long to get and keep worrying about him as I learn to be  #othersideofthespoon 

I’d also like to thank all of our children, our family and our friends, without you we couldn’t have got through this past two weeks.  We love you and appreciate all that you have done for us.  Thank you!

Have you ever been on the other side of the spoon?  What has your journey been like? 

Journey with me … mini2z

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Home and Resting

Well after getting to the hospital at 7:45 am and freaking because I thought we were late all was good. I grabbed the number 99 from the ticket holder and the front desk called me right away. Hubby makes it in and we go in up to day surgery.

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A couple rounds of Trivia Crack and the have me get changed into the lovely hospital dress & slippers, get me in a comfy lazy-boy and start asking the million questions. Another nurse started to put the IV in my left arm and I moved and my vein blew – OUCH!

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They got it in the other arm and tell me the OR’s are messed up and schedules are all over the place. About 15 minutes later they told me it looked like did be going very soon. At no point did they tell me my scheduled appointment was actually later.

About an hour and a half later the anesthetist (I cannot say this word at all) came and asked me his questions. After that another nurse came to check something on consent and that’s when I found that my rescheduled appointment was actually later than 9am.

So finally walked to the OR and got a warm blanket and a million more questions & a check of my L & R On my feet. Hop up, more warm blankies and then pain meds, then the horrible tasting anesthetic to which at that point I requested a cheeseburger tasting because it was after noon and I was beyond starving. That’s it!

I woke up in pain but surprisingly not nauseous. They asked me what I wanted and in my million questions times ten over, I explained I have no pain tolerance. I asked for a really really strong pain medication I had for me last ER trip for a diabetic induced migraine. The doctor agreed and you know what it’s not so good on the feet but after the 3rd try I was down to a six in pain from a solid 8/9. I was able to drink water and was ready to get back to the floor because I really wanted gingerale or Apple juice – anything but water because of the none cheeseburger taste I still had in my mouth.

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That’s when I got my first look at my feet. The nurse told me that I would have bandages for four plus weeks, they would only be changed at a hospital or clinic in an emergency and would be checked on February 10th by the surgeon. She then said for three days I was to only get up to use the bathroom otherwise my feet are to be elevated. She also said the shoe things are to be worn even on trips to the loo – EVERYTIME your feet touch the floor!!

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Ginger-ale I LOVE you even if you were a generic not Canada Dry ginger-ale! You see Canada Dry has always been my vice! My tummy gets upset and I always have a bottle by my nightstand and sometimes it takes over a week to drink one. I only have sips here and there and to me it makes the bad taste of medicine go away.

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Canada Dry GINGER ALE

Other than my surgeon not really telling me much about what to expect the whole hospital in Chatham was amazing. Okay not the pain but that is me. It’s a smaller hospital but everyone was super nice and helpful. I can say I’ve had a few other surgeries at both the hospitals in town and this was by far the best experience other than not being told about the change in times. Even if I had known about the change I might have been able to have a tea at 6am instead if 5am.

Getting into the truck was not fun. I think I fell asleep on the way home and then pain really kicked back in. Did I mention I have NO pain tolerance? Hubby and the boyo got me in and into bed. Crutches don’t work in the house but I will need them so thank you Vicki!!!

So I’m waiting until 11pm for more pain medication and then I really hope I can sleep!

The Pupalups both came and smelled my feet and checked out my new Louboutins.

Now on to healing…

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Ranger my pupalup checking out one of me feet
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